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Dug

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just wondering if anybody with PV is having bone pain and joint pain. my thighs are always hurting and I have periodic joint pain in fingers, elbows, shoulders and hips. pain pills only lessen pain a little.

Top reply
    • Stacyda30

      713d

      I hurt all the time. My knees, ankles, and my neck hurt the most.

    • Stacyda30

      713d

      I hurt all the time. My knees, ankles, and my neck hurt the most.

    • smokitcat

      726d

      I was only on 500 MG hydroxyurea, to keep my hematocrit below 45, and got the bone pain, now that I'm off hydroxyurea, if my hematocrit goes over 45, I have to have blood drawn. But at least the bone pains more or less gone.

    • smokitcat

      727d

      Yes I get bone pain, with my PV, not as bad now that my doctor, has stopped my hydroxyurea,

      • Dug

        727d

        @smokitcat I'm on a 1000mg of Hydroxyurea. Keeps my hematocrit lower, so not as many phlebotomies, but doesn't help with the pain.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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