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cartoonbean

763d

How do I pursue a diagnosis of Hypermobile EDS when my doctor won't give me one?

Top reply
    • History.and.cats

      705d

      Geneticists can be a resource, even though it doesn't have a genetic marker they can sometimes diagnose it. I'm waiting on my appointment now (a fun 3 year wait) but I was able to get a hypermobility spectrum disorder diagnosis from my rheumatologist. It is treated the same and the new thought is that they might be the same thing just with different criteria/severity

    • History.and.cats

      705d

      Geneticists can be a resource, even though it doesn't have a genetic marker they can sometimes diagnose it. I'm waiting on my appointment now (a fun 3 year wait) but I was able to get a hypermobility spectrum disorder diagnosis from my rheumatologist. It is treated the same and the new thought is that they might be the same thing just with different criteria/severity

    • MatchaBunn

      763d

      Ask them to make a note in your chart about refusal of exploring this diagnosis. I’ve heard that usually kickstarts the process because they don’t want to have that note in your file.

      • cartoonbean

        763d

        @MatchaBunn that's a really good idea! Thank you so much 😊 I'll try that

    • dayzed

      763d

      I really just recommend going to a different doctor if they won't check you out seriously. Especially if they're not recommending other options for you, if you're dealing with the side effects of it. Good luck!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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