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450d
Scheduled my intake and first few appointments with PT! Anyone experienced with PT for EDS/POTS symptoms? What sort of things did y’all do, and what did you find helpful? I’d love to have an idea what to expect or to ask about when I go in.
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Ehlers-Danlos Syndrome (EDS)
Low Back Pain
Postural Orthostatic Tachycardia Syndrome (POTS)
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449d
I did therapy a couple of times but we didn't know that I had hypermobility issues when I did it. As a result, my therapists ended up pushing me too far and I had several dislocations. The second time around, they didn't push me as hard (new place a few years later) and listened to me when I said something hurt. The second time gave me some temporary relief, but the pain ended up coming back. I kept up with the exercises, so it wasn't for a lack of trying
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I’ve been doing PT consistently for 5 years. Started with 3 times a week and now I’m at once every 3 weeks for maintenance. My advice is have them try multiple different treatments to see what is most effective with your body. For me it’s dry needling/accupuncture, deep tissue massage, and resistance bands/isometric exercises. It’ll leave lots of bruises, especially at first, so don’t be alarmed about that. Ask about strength building exercises to help reduce sprains, subluxations, and dislocations. I have found treatments are much more effective when I’m bluntly honest about what, where, and how much it hurts.
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@Alfubet Feel free to message me with any questions ☺️.
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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