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Gaz

606d

okay hello is there anyone with pseudotumor cerebri/iih alive on this apppppppppp

Top reply
    • RescueMom

      561d

      @Gaz vision came back much better, I only need glasses for reading. My headaches and migraines down to maybe twice a month. I had none the first year after surgery. However was warned they will come back some. I however have other health issues, mostly my heart so I deal with a lot. My IIH is the least of my worries now.

    • NannaL

      564d

      Hey! Another IHer here 🤗

    • RescueMom

      565d

      Me 🤗 I had brain surgery two years ago to get my VP shunt, due to rapid lost of vision from my IIH.

      • Gaz

        565d

        @RescueMom oh!! if you don't mind sharing, what is your situation like now? With your vision, with your shunt, with your health in general

        • RescueMom

          561d

          @Gaz vision came back much better, I only need glasses for reading. My headaches and migraines down to maybe twice a month. I had none the first year after surgery. However was warned they will come back some. I however have other health issues, mostly my heart so I deal with a lot. My IIH is the least of my worries now.

    • Acz

      565d

      Hi! I was actually diagnosed with it two weeks ago and am in the process of treating it. I’d love to discuss with you!

      • Gaz

        565d

        @Acz yoooo that would be cool! I'll dm you

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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