Experiencing Pseudoseizures: Seeking Similar Experiences

I have been told by the ER two years ago that the seizures I experience are not due to epilepsy but are from stress and are called pseudoseizures. Does anyone experience similar? And if so, what do they feel like? Mine are either sudden and I collapse/fall to the ground and become lifeless (no body movements) except for my eyes that flutter and roll back into my head, these last for 30 seconds to 2 minutes and I’m not all there but usually remember it a little bit. Or I have ones where I’m conscious the entire time (10-20 minutes) where I can sit up but am very heavy and can’t hold up my head, I’m unable to speak or move and feel trapped and scared and also my eyes are fluttering. It feels like I’m under warm water or that the air is thick. This one feels like hours to me but are usually 10-20 minutes long before I come to and am able to speak and move again.

Your answer

LunaWolf31

7mo ago

I have found out in 2019 that I had psuedo seizures but this year my neurologist said they are now called non epileptic attacks. Anyway I realized I have had them since my hs days in 2010 but my family and I never knew what they were because we thought the episodes looked like me having anxiety attacks. They have been worse since 2020 to where I have 3 or 4 in a week, almost 20 to 30 in a month. Finally got on ssi this year❤

Crystal_Chick_tee97

7mo ago

Yes I also have Pseudoseizures but I have what is called absence seizures and tonic clonic seizures. I've just been put on medical marijuana for them. Haven't had a seizures in over a month.

Ash.G

7mo ago

I have barely any idea what I look like from the outside when I have the weird feeling like I am going to pass out. I have the same triggers as people who have epilepsy though.

Owlstoe

7mo ago

have you looked into them/ gotten any testing done?

Ayden2005

8mo ago

I have those too but I didn't know they were stress related

ouijaclown

1y ago

Mine are absence seizures, but yes, they were psychogenic and I don’t really struggle with them anymore as I’m no longer in the situation that caused the trauma that induced them

Opallios

1y ago

I exeprience the same thing, I was diagnosed with Psychogenic Non-Epileptic Seizures (PNES) and Functional Neurological Disorder (FND) a few months ago. My seizures root cause is trauma, however I can experience them for many reasons like sickness, lack of sleep, stress, PTSD triggers, and more. I can have ones which mimic tonic-clonic/grand mal seizures where I'm semiconscious or unconscious, violently shaking, and my breathing gets impaired. I can have ones where I look like I'm zoning out (absence seizures) and ones inbetween. I recommend a workbook you can use with a therapist/counselor called "taking control of your seizures". I went from having 3+ seizures a day to having them very rarely. I wish you the best on your journey to recovery!

Owlstoe

1y ago

Im currently working on getting a referral to see a neurologist.

Owlstoe

8mo ago

Saw a neurologist and he took me seriously and said they sounded like non-epileptic seizures. I had an EEG that showed they were non-epileptic and I’m having an MRI this week to make sure their is nothing in my brain that shouldn’t be there. Then I will see a team of specialists for the seizures to get a concrete diagnosis.

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