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heyvp

662d

Hello! Does anyone have experience with pregnancy and Hypermobile EDS? although I'm able to find plenty of positive outcomes, I'm not able to find information on the impact on our bodies after giving birth or during.

Top reply
    • Azucena

      656d

      @Sewsia I also have a tilted uterus. Do you know of any links with more information on this?

    • Sewsia

      660d

      I have hEDS. I have had numerous miscarriages, one still born, and 3 live births. Every pregnancy involved preterm labor. Most beginning when hitting the second trimester. My uterus was tilted back, which explained my back labor, and was most likely due to the hEDS. At 24, I had my uterus removed due to endometriosis. Kept my ovaries for 20 years. The pregnancies and hEDS caused issues involving central rectum prolapse and bladder prolapse. My sister, who also has hEDS had high risk pregnancies, as well. Feel free to ask me any questions.

      • Azucena

        656d

        @Sewsia I also have a tilted uterus. Do you know of any links with more information on this?

    • Azucena

      661d

      It can worsen our symptoms because the hormones released during pregnancy products more hypermobility of the joints. I've been advised to speak to a geneticist if I want to have a baby.

      • heyvp

        660d

        @Azucena that is the gist I am getting. I've met with a fertility specialist and geneticist, but since there isn't a marker for Heds, I'm really interested in understanding more about the maternal experience before I make a decision.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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