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mooanne

815d

is there a specialist I should see for my Pots

Top reply
    • GuitarGal24

      806d

      A lot of cardiologist/ neurologists don’t know about it. It took me six years to get diagnosed. I finally got on a waitlist for the world expert located in Ohio and it was a year wait, I flew there and was finally diagnosed by him. His name is Dr. Blair Grubb and he has a Wikipedia. Even if you can’t go to him I recommend following his research. The best way to find doctors familiar with POTS is to join the Facebook group for dysautonomia international in your area and crowd source among the members. I found the rest of my local doctors that way.

    • GuitarGal24

      806d

      A lot of cardiologist/ neurologists don’t know about it. It took me six years to get diagnosed. I finally got on a waitlist for the world expert located in Ohio and it was a year wait, I flew there and was finally diagnosed by him. His name is Dr. Blair Grubb and he has a Wikipedia. Even if you can’t go to him I recommend following his research. The best way to find doctors familiar with POTS is to join the Facebook group for dysautonomia international in your area and crowd source among the members. I found the rest of my local doctors that way.

    • hazyeclipse

      814d

      Pots is a neurologic condition, or sometimes considered neurovascular, so ideally a neurologist or cardiologist

    • Sunshine_Sue

      814d

      Cardiologist is how I see. If you have a local hospital that recommends a Particular cardiologist that’s where I would go.

    • raven2814

      815d

      Oh

    • E11iefant

      815d

      They’re so hard to find!! I have Kaiser HMO insurance and there’s literally no one in the network😵‍💫

    • raven2814

      815d

      Idk I'm trying find out

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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