if you can remember what happens during an episode, it's not a seizure, and it's definitely not a seizure related to POTS. if you have an anxiety disorder and the episodes usually come on during a POTS attack, you probably have functional neurological disorder, or FND. it used to be called conversion disorder

I have POTS as well as non-epileptic psychogenic seizures. My seizures are brought on by stress and anxiety and will start out feeling like a panic attack. After that my entire body starts seizing and shaking. Afterwards I'm generally very tired and out of it.

I get this too!! Im always conscious, just unable to speak or move much or at all. I shake and twitch quite a bit and I often have a panic attack along with it. It certainly looks like a seizure when its happening but I never fully lost consciousness.

It's actually really exciting to me to find out that other people have this too. This is the first time I've heard of anyone else experiencing it

I have it, and mine does have seizures,but actual term for it is jerks, it's like mini seizures

Syncope can cause body jerking and I get that too

I've seen some ppl say it's just body jerking. There is a difference when it's affecting your speech, consciousness/memory/awareness, cognitive functioning, and limiting movement. There are lots of different seizures. If you have a level of consciousness, it's "partial." I have POTS and seizures. I'm still in the diagnostic process for the seizures but am on medications for it. I've only had a few "simple partial" seizures where it was really scary with seizing. Everything else has been "complex partial" seizures where it looks like I'm "spacing out" but I'm stuck in a seizure. It can make you internally panic during one for sure. I have panic disorder, can go catatonic, chronic dissociation, and regular fainting, so it took me a long time to discover the differences between the sensations and symptoms and criteria. It's good to follow new leads because no matter what the result, you'll be learning about yourself. If you find out they're seizures, it can still be very hard to find the cause of seizures. They can be linked to epileptic and so many nonepileptic conditions like diabetes. I've seen dysautonomia can be a cause. Some people will just have a couple seizures in their lifetime for seemingly no reason. For anything concerning me physically, I'll accept psychogenic/psychosomatic causes but only after the other possibilities are ruled out. Depending on the situation, it can be dangerous to jump to that conclusion. Lemme know if you have any questions about it or what my seizures feel like <3

I call them adrenaline surges and they can look very similar to pain attacks but it is essentially your autonomic system freaking out. I also get dystonia (random twitches) which sound like what you are describing. Clonidine helped immensly

🙌

I feel that I also have that semi conscious un able to move my body issue with my spells aswell! Like I'll remember bits and pieces and I'll jerk or my eyes will roll and flicker slightly! I wish you the best with your search though!!

Before my diagnosis I was actually getting tested for microseizures, but my testing came back negative. After a little more research, I found that a lot of my seizure like symptoms could be linked to pots. I wish I had more info to offer but good luck!

hahahahahahahaha yup, i had 3 in 3 weeks. we think it’s from my antidepressant but my HR always increases before, during, and after. i find it sus. my neurologist barely knows POTS and my POTS doc barely knows about seizures it’s an amazing combination lol but we think it’s also a blood flow issue, which could explain a possibility of maybe having pelvic congestion syndrome

Wait thats not just me? I thought I was the only one that that happens to... Honestly good to know I'm not alone in it