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Anyone with POTS have any recommendations? My primary care thinks I have it but referred me to a specialty cardiologist and he isn’t available until late April. It’s been a week of hell so anything you’d like to share is appreciated 🥰
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Ehlers-Danlos Syndrome (EDS)
Postural Orthostatic Tachycardia Syndrome (POTS)
Cardiac dysrhythmia
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447d
@ninners absolutely!
The good drs take the longest to get into
I believe a GP/PCP may be able to give a clinical diagnosis in the meantime? But cardiology is important to make sure there’s not a different kind of arrhythmia going on. As far as symptom management in the meantime, there’s a LOT. But the general vibe is Compression, Inversion, and Hydration. I usually go through a few gatorades/liquid IVs a day, and that’s super helpful in keeping my blood pressure in a decent place (salty foods also help retain hydration). Compression socks are useful if you can tolerate them, taking breaks to put your feet up, and getting real comfortable lying on the floor (look up the POTS recovery position) are all helpful to avoid fainting. Pro tip for mornings: I have better luck if I sit up in bed for a few minutes before getting fully up in the morning (I tend to get pre-syncope/headaches if I just get up all at once). I know that’s a ton of info, but if there’s anything specific you’d like thoughts or ideas on, I’m happy to share what I can! Welcome to the club 😅🧂
Message me! I have tons of recommendations!
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@Equinox would it be alright if I message you as well? 😌
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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