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MoonFairy

770d

Have any meds for POTS actually helped you? I was prescribed midodrine, and mestinon. I stopped the mestinon early due to adverse effects. I went to high dose of midodrine 4x a day, but didn’t notice much of a difference, so I stopped taking it. My adhd med: Vyvance, helps significantly, especially with the fatigue, but not to the level that I’d it would. What do you guys take? Have they helped you?

Top reply
    • Lkbmotion

      767d

      Midodrine works really well for me, so I can't really speak to other medications. I was on Florinef for a little bit. While it made me feel worse, it's worked for a lot of people. It's meant to increase blood volume. Maybe talk to your doctor about it

    • Lkbmotion

      767d

      Midodrine works really well for me, so I can't really speak to other medications. I was on Florinef for a little bit. While it made me feel worse, it's worked for a lot of people. It's meant to increase blood volume. Maybe talk to your doctor about it

    • hazyeclipse

      768d

      Oh and the other downside with midodrine is when I take it every day it loses effectiveness :/ so I need to find other options

    • hazyeclipse

      768d

      Midodrine is amazing. Unfortunately it doesn't help much when my symptoms are abysmally bad but when they're mild to moderate it helps a lot. Like going from struggling to walk and bend and do light tasks to moving around with relative ease. Propranolol doesn't help much with my symptoms, it just helps keep my tachycardia from being quite as extreme. Caffeine is also helpful. I want to try mestonin though, because the goosebumps and light sensitivity midodrine causes is really unpleasant. What adverse affects did you have?

      • MoonFairy

        768d

        @hazyeclipse I had bad muscle spasms with it. But it was only in high doses, but low doses didn’t help with anything

    • justkittenya

      769d

      Propranolol XR made a huge difference. I also get IV fluids three times per week.

    • KayEDS

      769d

      Nope. I’m trying a new one now, 3 times a day. If this one doesn’t help my cardiologist said he’ll do more testing and whatnot. I’m so incredibly grateful to have an amazing doctor:)

    • Nono5

      769d

      Most medications I’ve tried I couldn’t really tell if there was any improvement plus they would give me side effects so it was so hard to tell. I finally stopped all medications and wasn’t feel any worse … but now I’m taking a beta blocker and I see a difference (I’m no longer in tachycardia) and it doesn’t give me side effects.

    • fxrest.faxrie

      770d

      I'm on propranolol and that's helped me pretty well regulate my heart rate tbh. I certainly recommend that one.

    • horseylov143

      770d

      doesn’t help too much w the fatigue but definitely helps me feel more physically grounded

    • horseylov143

      770d

      it’s not completely better, but it helps w my palpitations and my heart rate a lot

    • horseylov143

      770d

      ok so midodrine has not really helped me much, it just gave me an obscene amount of goosebumps all the time which was very strange? but metoprolol has literally changed my life- please look into it or ask your doctor!!! it really helps w my like heart related symptoms, i had really bad palpitations and like dizziness all the time and the fatigue when standing up

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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