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LeeFLLF

Updated 10mo ago

Dealing with Joint Pain in POTS

What do people with POTS use for joint pain? I have compression socks which I wear for travel but don’t find that they help my joint pain at all. I have a knee brace and that helps half the time but all of my other joints are constantly in pain, stiff or cracking when I move them, especially my fingers and knees. I have tried to seek help from my doctors but they won’t give me anything until my 12 month check up.

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Officialishness

1y

That’s so weird your doctors are refusing care, I would continue to fight to get an appointment sooner or even look at a different doctor if possible. I use braces for every joint possible (wrists, ankles, knees, etc) along with CBD/lidocaine salve. I sparingly use NSAIDs because they can build resistance and also cause other issues (liver injury, stomach ulcers, etc). NSAIDs should really only be used on really bad days - I find Aleve and Ibuprofen work best for joint pain and inflammation. Compression stockings and garments can only help to an extent and help very little with joint inflammation. Overall, it’s important to find what works best for you. I really do hope you are able to get professional advice and help - it’s extremely unethical for a doctor to straight up refuse care.
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LeeFLLF

1y

ah thank you! I’ll try some of the stuff you’ve suggested. I have wanted to try a wrist brace as the one I have for my knee takes away the pain pretty well, just sometimes I find it doesn’t work. That may just be me though not fastening it tight enough or something. I will keep trying to get through to my doctors. Apparently they check on everyone and give aids and medicate after 12 months as most people usually manage to manage their symptoms in that time.
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mushroomintheforest

1y

Braces for fingers/wrists/most joints can be helpful, making sure you're not too cold... cold joints are stiffer and more sore.. on that same thought, heat packs can be good for some relief, and encorporating them into a routije can help with longer term relief. Tiger balm can be good too. I hope any of these help you :)
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LeeFLLF

1y

thank you so much! I’ve been debating getting some tiger balm for a while now! I’ll be sure to give it a go :)
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BbyBunnny

1y

Lots of ibuprofen and tylanol, braces if needed. But rice socks and ice packs/buckets don't hurt either
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LeeFLLF

1y

I’ll try ice packs! I usually use deep freeze but don’t find it helps too much but I’ll use ice for when they’re painful :) thank you
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Zebragirl

1y

I use ktape
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LeeFLLF

1y

ah I’ve never thought of that! I’ll give it a try :) thank you
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Mickey1210

1y

Currently I had to give in to medicine meloxicam and tinazadine (muscle relaxer and NSAID) it helps
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LeeFLLF

1y

thank you I’ll keep that in mind for when my doctors ask about medication!
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Aerial767

1y

I love kt tape i just get the Walmart version it’s pretty cheep and way more comfortable than braces
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LeeFLLF

1y

thank you I’m gonna give that a go since 2 people have said it now!
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Quari

1y

I have been using ktape, non weight bearing exercises, icing, heat, tylenol, and the only thing that is actually relieving my pain until my doctor's appointment is CBD. I do CBD lotion with lidocaine on low pain days, and CBD gummies on hard days. Very much helps and I don't experience negative side affects personally
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LeeFLLF

1y

ah thank you so much! I’ll give CBD lotion a try. I bought ice packs the other day and used it when I had a flare up yesterday and that really helped :)

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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