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zippi

609d

hi everyone!!! so i have POTS and hEDS and i get this super weird feeling that nobody has been able to relate to so i’m wondering if anyone here gets it. sometimes i get this feeling in my knees / calves where it feels like my muscles have rug burn and then i ran a marathon with spikes in a cage around my legs. it’s extremely painful and i still don’t know what it is 😅

    • abbz

      608d

      yup yup yup. it’s like super bad pain that’s so bad like you can barely explain it! sometimes it feels like someone has a knife in the middle of my legs and are just spinning it around! lmk if you relate to this!!

    • Entropyluna

      608d

      That sounds like it might be neuropathic pain. For me it feels like having electrical shocks running down my legs and arms, but a lot of people experience it as a burning or stabbing sensation. It's a common symptom with EDS

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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