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849d

What is a POTS flare like for you? Trying to figure out what’s a flare and what’s just potsie life

Top reply
    • vee805

      848d

      There's support groups on Facebook I'm in. Thousands of women and some men who go thru what we do. It has helped me so much feel less crazy and to know the things I'm feeling aren't all in my head. If anyone wants links let me know

    • vee805

      848d

      There's support groups on Facebook I'm in. Thousands of women and some men who go thru what we do. It has helped me so much feel less crazy and to know the things I'm feeling aren't all in my head. If anyone wants links let me know

    • vee805

      849d

      I don't think we will ever figure it out. Because it affects everyone so differently. From what my dr says, learn your triggers, create a routine

    • kab

      849d

      Following- I’m still trying to figure this out

    • Smash

      849d

      Oh man. I feel that, so much! Normal would be nice.. but here we are.

    • vee805

      849d

      I'm still trying to figure it out myself. I know my pots never goes away but there's days I feel pretty decent. It could lazy weeks to a months. Then one day I get palpitations that last hrs, and it happens everyday. I feel constant dizziness and fatigue. Some days my hr is just elevated I know to take it easy those days. I think it's the palpitations that get to me the most. It causes terrible anxiety and panic attacks. I am on beta blockers which has controlled my heart rate. Prior to being on meds I was bed ridden for a year and a half. Everytime I stood my heart rate could get as high as 200 and get stuck staying high for hrs. The tremors and the blood pressure get bad too. There's been times I have had to get off my meds and it was horrible cause I was again bed ridden. Its hard to live with this. My life is a constant routine of staying hydrated, wearing compression socks, elevating legs, keeping stress down, keeping anxiety under control, not doing too much physical activity. I just miss being normal

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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