beepis

308d

Heya! just getting into this to hopefully help me find some answers to whatever my body is deciding to do this month

I have pots and my doc and are pretty sure I may have some digestive issues.
haven't been able to eat very much and when I do it feels like a rock.
but I don't ever vomit

my pots also gets pretty bad when I eat for some reason. I often will not want to eat or drink because of it. and I have pretty intense pots symptoms some days making it so it's difficult to walk. even with meds and electrolytes.

lmk if you guys have any ideas

Nausea and Vomiting

Chronic Abdominal Distention

Meclozine

Postural Orthostatic Tachycardia Syndrome (POTS)

Dizziness

Abdomen & Pelvis Pain

Increased appetite

Cyclic Vomiting Syndrome (CVS)

Pyridostigmine

View all
  • BoomerangValentine

    308d

    The first thing that comes to mind is mestinon (pyridostigmine). It’s used off label for POTS and improving motility/digestion. I take it for my POTS, gastroparesis, and intestinal dysmotility. It might be worth doing a gastric emptying study since gastroparesis can come with POTS. Or perhaps an upper endoscopy to look for gastritis, ulcers, h pylori, etc. These aren’t necessarily POTS related but can easily come with the stress of being chronically ill and can definitely make symptoms worse. If you get a diagnosis for a gi disorder, you could probably get nausea meds (like zofran or phenergan) or meds for abdominal pain. Oh also meclizine is a good drug for nausea, dizziness, and lightheadedness, so I find it’s helpful for my POTS and my gp. I’m glad you’re taking electrolytes! If you want some that you don’t need to drink (to reduce volume in your stomach), many people like salt stick. Good luck!! I hope you get some relief soon :)

  • SmileySnail

    300d

    I've heard about POTS being worse with food b/c of the increased blood flow to the stomach just like the blood pooling in the legs when we stand. I've experienced worse symptoms eating too, but I'm still trying to get diagnosed

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