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beartuck

465d

Hi guys I’m trying to get a diagnosis for pots and it’s seeming to be a nightmare

Top reply
    • pink_sky

      457d

      Cardiologist is definetly your best bet at getting a diagnosis. I was diagnosed with a tilt table test, it's probably the best test for POTS available.

    • pink_sky

      457d

      Cardiologist is definetly your best bet at getting a diagnosis. I was diagnosed with a tilt table test, it's probably the best test for POTS available.

    • chocolatetruffle

      461d

      What have you tried so far in terms of trying to get a diagnosis?

      • beartuck

        460d

        @chocolatetruffle not much at the moment just trying to get an idea of what’s the best way to go about it

    • Alicat07

      461d

      Tilt table test is generally the easiest way to get diagnosed but it’s certainly not a fun experience. Electrocardiolost or a clinical pharmacologist are the best with it in my experience but everyone has a different one 🤷

    • Paperheartz

      462d

      I was diagnosed with a tilt table test. Thats like the Golden criteria for pots diagnosis.

    • Ellis_b

      462d

      I was diagnosed by a cardiologist and I had to be very insistent on having a tilt table test.

    • outpickingdandelions

      464d

      So I don't technically meet the criteria for POTS, but I do have some form of dysautonomia (unknown type but it doesn't matter for treatment). I'd suggest seeing an electrocardiologist (cardiac electrophysiologist).

    • DieselWeasel

      464d

      I have a great cardiologist thankfully. I remember seeing an electrophysiologist who did not take me serious at all. So I told my cardiologist he pondered what could be causing it. He came up with POTS. He sent me for a tilt table test and I passed out during the test for a positive diagnosis. You just need a cardiologist who will humor you and send you for a tilt table test.

    • Holz

      465d

      Getting a diagnosis is a pain, I’d say a cardiologist is a good bet but don’t let them push you around, stand your ground and advocate for yourself a lot of doctors are very good at not giving you a diagnosis, if you don’t mind what symptoms do you have?

      • Fawwn

        464d

        @Holz 100% agree. I was with specialist cardiologist who gave me medication for pots but told me there was no point in diagnosing me. It took 6 years of asking for her to finally give me a diagnosis

        • beartuck

          463d

          @Fawwn it’s ridiculous

      • beartuck

        464d

        @Holz I have my heart rate race from roughly 80 to 130 when I stand, passing out, dizzy really struggle with strenuous activities as I lose my breath quickly. Lose sight and hearing before passing out, struggle with hydration no matter how much I drink, all my tests (x-rays and blood tests) come back normal, tremors, tingling hands and nose when stand up, extreme headaches when I stand too quick and extreme fatigue

        • Brokenbodyclub

          464d

          @beartuck this sounds more like hyperadrenergic POTS so maybe ask about that, some of the symptoms aren’t “regular” POTS but could be POTS and a neurological disorder. Good luck!! 💗

    • NewYork

      465d

      Neurologists or cardiologists are your best bet probably. Just a heads up, a diagnosis may take a couple years. Good luck

      • beartuck

        465d

        @NewYork thank you

    • Aly24

      465d

      There is a dysautonomia international website with doctors listed on it! Try one closest to you! Good luck!

      • beartuck

        465d

        @Aly24 I will have a look thank you x

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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