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beartuck's Post
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beartuck

1y ago

Struggling to get a POTS diagnosis

Hi guys I’m trying to get a diagnosis for pots and it’s seeming to be a nightmare

Your answer

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pink_sky

1y ago

Cardiologist is definetly your best bet at getting a diagnosis. I was diagnosed with a tilt table test, it's probably the best test for POTS available.
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chocolatetruffle

1y ago

What have you tried so far in terms of trying to get a diagnosis?
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beartuck

1y ago

not much at the moment just trying to get an idea of what’s the best way to go about it
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Alicat07

1y ago

Tilt table test is generally the easiest way to get diagnosed but it’s certainly not a fun experience. Electrocardiolost or a clinical pharmacologist are the best with it in my experience but everyone has a different one 🤷
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Paperheartz

1y ago

I was diagnosed with a tilt table test. Thats like the Golden criteria for pots diagnosis.
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Ellis_b

1y ago

I was diagnosed by a cardiologist and I had to be very insistent on having a tilt table test.
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outpickingdandelions

1y ago

So I don't technically meet the criteria for POTS, but I do have some form of dysautonomia (unknown type but it doesn't matter for treatment). I'd suggest seeing an electrocardiologist (cardiac electrophysiologist).
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DieselWeasel

1y ago

I have a great cardiologist thankfully. I remember seeing an electrophysiologist who did not take me serious at all. So I told my cardiologist he pondered what could be causing it. He came up with POTS. He sent me for a tilt table test and I passed out during the test for a positive diagnosis. You just need a cardiologist who will humor you and send you for a tilt table test.
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Holz

1y ago

Getting a diagnosis is a pain, I’d say a cardiologist is a good bet but don’t let them push you around, stand your ground and advocate for yourself a lot of doctors are very good at not giving you a diagnosis, if you don’t mind what symptoms do you have?
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Fawwn

1y ago

100% agree. I was with specialist cardiologist who gave me medication for pots but told me there was no point in diagnosing me. It took 6 years of asking for her to finally give me a diagnosis
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beartuck

1y ago

I have my heart rate race from roughly 80 to 130 when I stand, passing out, dizzy really struggle with strenuous activities as I lose my breath quickly. Lose sight and hearing before passing out, struggle with hydration no matter how much I drink, all my tests (x-rays and blood tests) come back normal, tremors, tingling hands and nose when stand up, extreme headaches when I stand too quick and extreme fatigue
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NewYork

1y ago

Neurologists or cardiologists are your best bet probably. Just a heads up, a diagnosis may take a couple years. Good luck
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beartuck

1y ago

thank you
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Aly24

1y ago

There is a dysautonomia international website with doctors listed on it! Try one closest to you! Good luck!
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beartuck

1y ago

I will have a look thank you x

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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