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777d

What is the best way to get a diagnosis for POTS? is there a specialist that can help or is it just your primary?

Top reply
    • Avie

      773d

      Typically, neurologists and cardiologists or clinics specializing in dysautonomia will have the technology necessary to diagnose pots.

    • Avie

      773d

      Typically, neurologists and cardiologists or clinics specializing in dysautonomia will have the technology necessary to diagnose pots.

    • Joeybutterfly

      773d

      Then I had a table tilt test

    • Joeybutterfly

      773d

      Neurologist

    • Fireytaste

      774d

      I went to a cardiologist and he referred me to a dysautonomia specialist

    • Belle640

      774d

      A cardiologist/electrophysiologist is who diagnosed me. I’d seen a different cardiologist prior to that and his response was “you probably have some form of dysautonomia but it doesn’t matter which one so testing for it isn’t important”. So I found another doctor 🤷🏻‍♀️

    • princessbun

      775d

      I diagnosed myself with a pulse oximeter, and then went to a cardiologist and played dumb and he did a poor man's tilt in the office and he was like "have you ever heard of POTS"

    • floralfailure

      775d

      i went to a neurologist who said i don’t have all the symptoms but that she still thought it was POTs, then sent me to every specialist under the sun to make sure it wasn’t something else. shes the one who treats my POTs as well.

    • kgraceg00

      777d

      I got admitted for tachycardia that they were relating to hypovolemia and dehydration. When it was fluid responsive and got worse with changing positions, i.e. laying to sitting and sitting to standing, they consulted cardiology. They did an echo due to family history of sudden cardiac death and cardiomyopathy. When it resulted as normal and my EKG was sinus tachycardia with borderline prolonged QT interval, they diagnosed me with POTS. I followed up with cardiology after discharge. They encouraged hyperhydration, increased sodium intake, and compression stockings. I have completed a 24 hour holter monitor and additional EKG’s. I am now also on a beta blocker, Propranolol,to help with continued tachycardia.

    • Messymexi

      777d

      I went to my primary and then to a cardiologist. I also had a the poor man's table tilt done (sit down, measure blood pressure and then stand and measure blood pressure). I also see my cardiologist to keep a track of my heart via ultrasounds because of my EDS

    • Chrys

      777d

      Funny process; Went to my neurologist, who referred me to a cardiologist, who referred me to the geneticist. Had a DNA test done and surely enough they found POTS and hEDS in there. They only had me lay down and stand up a few times, so I was lucky to not have to do the tilt table test.

    • Zedgirl

      777d

      I went to my primary and she was able to diagnose me right then and there with a poor man’s tilt table test

    • UnluckyUnicorn

      777d

      I went to a cardiologist

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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