Concerns about POTS Diagnosis Results - Is This Normal?

Keep in mind, when a cardiologist says "nothing to concerned with", it does NOT mean that you dont have POTS. It means its not a cardiac event thats causing the high heart rate. It's important to us, but not concerning to them. Because theres really not specific, recognized treatment for POTS few cardiologists will go there. Even my latter cardiologist, told me in my first year seeing him that even though he could order a TTT, he recommended not doing so "because there really isnt any treatment for POTS". So, I skipped because why spend $6500 for something without treatment. 2nd year, after seeing all my 200bpm loop recorder recordings, he mow suggested it. Now he admitted that "there are some medicines they could try that might work".

Same my holter basically came back inconclusive and I felt so? Ashamed I guess? They decided to go forward with a tilt table test and I’m terrified lol

I was told the same thing honestly

Same! I had a heart monitor and my max was 141, the most I did physically was climb the stairs but because it’s not something they’ve seen before they said it was “inconclusive” and called it a day

I had seen 2 cardiologists prior and had so many tests and monitors. I was informed its "normal for young women to faint." Fast forward a few years and a fainting episode sends me to the ER because I hit my head and one of the doctors there finally said somethings up and now I'm being seen by electrophysiology. My heart rate ranges from 33 bpm (asleep) to 181 bpm (simply standing up).

I’ve had to wear the stupid heart monitor twice for an extended period of time both times because they showed nothing! The reason they show nothing is there is zero context to the monitor they don’t know if you’re sitting, standing, working out or laying down. I was diagnosed with the tilt table test. Context is huge with POTS stupid heart monitors….

My cardiologist isnt concerned and i have topped 200bpm (implanted heart rate "loop recorder"). Similar thing is because it doesnt stay up, it doesnt count. Even after explaining that the reason that it doesnt stay up because i immediately sit down (reclining position with knees up). Bottom line, there really isnt much they can do without causing more substantial issues. And 130bpm seems like a lot to you but it is all relative. Now 5 years into my pots, i dont notice 130bpm. 170bpm, i start start noticing. First cardiologist didnt offer tilt table test. In hindsight because he didnt actually treat pots, said he did, but didnt. 2nd cardiologist recommended against tilt table test because even if it determines pots, there really isnt any treatment for it. A year later, he offered the tilt table test. So i questioned why we would do that and spend another $6000 and risk my small uphill advancements of the last few years, his answer was that there are a few thing they could try. Lots of trial and error. I skipped because i wasnt willing to go back to the threats of uncontrolled episodes and emergency room intervention. Diagnosis can help at work, but i was able to get my pcp to write it up as general dysautonomia. That worked. Now, i work from home and go from bed to bed desk. Great for my condition. Boss is very understanding too. It was worth finding a place that would cooperate with me. Flexibility.

🙌I got diagnosed yesterday. I had the same issue ask them for a referral to a cardiac specialist. Explain it all to them and convey your frustration. Hang in there it's worth it.

Find a new cardiologist, I'm sorry you went through that but I have as well you just have to keep on finding the right doctor you will find one eventually I know it sucks rn. Don't give up

If it's more than 30 beats per minute passed your resting heart rate, then that's is considered a Tachychardia, love doctors who just gaslight you cause they don't care to take in consideration what u go through and want to take money and get you on your way

How sustained does a HIGH heart rate need to be for it to be POTS? They said it was normal bc the high rates were not sustained