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lily.is.in.pain

1y ago

How long did it take to get a PoTS diagnosis?

to anyone who has been diagnosed with PoTS, how long did the diagnosis process take for you? i’ve been having symptoms for about two years, initially went to my gp for headaches, migraines and fainting episodes and was dismissed. i later went back after doing research on PoTS and i’ve been having testing done since then. these tests have been very scattered and very repetitive i.e “we took your bloods and they’re normal! let’s do two more rounds to be sure” or “if nothing changes in two months, come back”. its so frustrating because my symptoms are only getting worse, and i am receiving no support :/

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Lyzard

1y ago

It took going to several doctors before one did the poor mans tilt table test which confirmed and then she got me neurologist, cardiologist, and gastroenterologist to help manage my symptoms. It's hard to get anyone to listen! But keep up with it and find a doctor that knows enough about pots to help.
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NewYork

1y ago

It took about 2 years. I got my diagnosis from a neurologist using the poor man’s tilt table test. Also, it’s normal for your bloodwork to be perfect. That’s what makes it so hard for doctors to find anything wrong with us.
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Belugabear

1y ago

How many doctors have you seen? Have you seen a cardiologist? My gp just took my blood pressure lying down, sitting, and standing and saw the trends followed POTS, so she sent me to a cardiologist who diagnosed me based on symptoms pretty much immediately. If you haven’t gone to any other doctors I’d recommend doing that! Blood tests don’t really help in this case sadly
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lily.is.in.pain

1y ago

apparently a referral has been put through, but it’s been months and i have been given no indication of how long the wait time will be. i’m autistic and still living with my parents who are my carers so they are in control of my medical appointments, so it’s difficult for me to have a say in my own treatment. i’m just hoping the wait time isn’t too long

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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