When were you diagnosed with POTS?

I’m on a heart monitor right now the cardiologist wasn’t seeming comfortable with pots with a tilt table test but rhumologist did one . What do I do now? With the holster monitor for 7 days catch anything or bring me closer to what I should do next ? Or will it be a dead end where the cardiologist doesn’t even look at pots anymore I do have a severe b12 issue not sure if it’s mimicking pots or if it caused pots from nerve damage

19, but I had symptoms for well over 4 years with charts to prove I have it.

Age 23. It took a lot of throwing up at pet stores to make people put the pieces together right finally.

35 I suspect I’ve had dysautonomia since I was a teen. During my teen years I had vasal Vagal syncope, I believe it’s being renamed and physicians think it’s all part of the same thing.

Diagnosed at 17 but I've experienced symptoms most of my life, initially getting worse at 15!

19. I'd been having symptoms since I was about 14-15 though. I'm now 21

23

16

I was 15 and im now 21

I’ve had symptoms for a long time but diagnoses about 2 years ago, age 16

i was actually diagnosed with atrial tachycardia at 17, after experiencing symptoms since i was around 13. mine isn’t too extreme but to get diagnosed i went to a cardiologist and had a stress test, then a heart monitor for a week

About 15

I was 19 at diagnosis but symptoms started at 13

It took me YEARS to be diagnosed. i was 20 when they finally did

I was 20 when I got diagnosed. I got really lucky, because for me the process was easy. I saw a cardiologist who did a holter monitor. Then she ordered a tilt table test which confirmed POTS. I had to see one cardiologist before her, and he was really dismissive (didn’t want to run any tests), but once I found the doctor who diagnosed me, it was really easy

About 15 when I was diagnosed, was about 23-25 when it got significantly better. I’m 28 now. Still have it but it’s still significantly better and I don’t require medications or IVs anymore.

I wasn't diagnosed until I was 26