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rosieee

782d

How old were you when you were diagnosed with POTS?

Top reply
    • Tinyty

      767d

      I’m on a heart monitor right now the cardiologist wasn’t seeming comfortable with pots with a tilt table test but rhumologist did one . What do I do now? With the holster monitor for 7 days catch anything or bring me closer to what I should do next ? Or will it be a dead end where the cardiologist doesn’t even look at pots anymore I do have a severe b12 issue not sure if it’s mimicking pots or if it caused pots from nerve damage

    • Tinyty

      767d

      I’m on a heart monitor right now the cardiologist wasn’t seeming comfortable with pots with a tilt table test but rhumologist did one . What do I do now? With the holster monitor for 7 days catch anything or bring me closer to what I should do next ? Or will it be a dead end where the cardiologist doesn’t even look at pots anymore I do have a severe b12 issue not sure if it’s mimicking pots or if it caused pots from nerve damage

    • SJP

      770d

      19, but I had symptoms for well over 4 years with charts to prove I have it.

      • SJP

        770d

        @SJP Oh, I already responded 😂 Fibro brain fog, sorry.

    • AudaCity

      771d

      Age 23. It took a lot of throwing up at pet stores to make people put the pieces together right finally.

    • Weeble_Wobble

      771d

      35 I suspect I’ve had dysautonomia since I was a teen. During my teen years I had vasal Vagal syncope, I believe it’s being renamed and physicians think it’s all part of the same thing.

    • outpickingdandelions

      772d

      Diagnosed at 17 but I've experienced symptoms most of my life, initially getting worse at 15!

    • hazyeclipse

      780d

      19. I'd been having symptoms since I was about 14-15 though. I'm now 21

      • SJP

        774d

        @hazyeclipse Same here, except 20 now.

    • Tot

      780d

      23

    • Tao

      781d

      16

    • kingseijuro

      781d

      I was 15 and im now 21

    • Student_girl

      781d

      I’ve had symptoms for a long time but diagnoses about 2 years ago, age 16

    • teeny

      781d

      i was actually diagnosed with atrial tachycardia at 17, after experiencing symptoms since i was around 13. mine isn’t too extreme but to get diagnosed i went to a cardiologist and had a stress test, then a heart monitor for a week

    • NewYork

      781d

      About 15

    • Leighton

      782d

      I was 19 at diagnosis but symptoms started at 13

    • Jillfp511

      782d

      It took me YEARS to be diagnosed. i was 20 when they finally did

    • BoomerangValentine

      782d

      I was 20 when I got diagnosed. I got really lucky, because for me the process was easy. I saw a cardiologist who did a holter monitor. Then she ordered a tilt table test which confirmed POTS. I had to see one cardiologist before her, and he was really dismissive (didn’t want to run any tests), but once I found the doctor who diagnosed me, it was really easy

    • Brynn36

      782d

      About 15 when I was diagnosed, was about 23-25 when it got significantly better. I’m 28 now. Still have it but it’s still significantly better and I don’t require medications or IVs anymore.

      • rosieee

        782d

        @Brynn36 what was the process you went through to get your diagnosis

        • Brynn36

          782d

          @rosieee so I saw a POTS and EDS specialists. My pots at the time was so bad they didn’t need to do a tilt table test and though one would be too much for my body. He was able to diagnose me with medical history, a BP and heart rate journal he asked me to keep, a halter monitor, and BP testing laying down, sitting, and standing in his office repeated over a few visits.

    • Sadchemist

      782d

      I wasn't diagnosed until I was 26

      • rosieee

        782d

        @Sadchemist what was your process of getting a diagnosis?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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