Advice for Dealing with a POTS Diagnosis

Do your own research so you can effectively advocate for yourself. You are your best advocate. I got a smart watch to consistently monitor and log my heart rate (my doctor wanted me wearing a heart monitor all the time and this was the compromise). I will add a Liquid IV packet to my water bottle everyday, sometimes I’ll have two if I’m spending a lot of time in the sun or sweating. Your blood sugar levels will have the biggest effect on your symptoms, so make sure you are eating something with fiber or protein at least every three hours. Keep note of things (I.e. food, activities, temperatures) that make your symptoms better or worse. For example, I can’t sweep or mop the floor without passing out, hot showers or hot tubs make my vertigo immensely worse (especially the jets), and bending over makes my vision go dark. This one may seem unproductive, but daily cardio. My preferred is rowing, but I also take lots of walks and swim laps. It will help build up your tolerance and lessen symptoms., though it may feel very unproductive at first. Don’t be afraid to take it easy. You know your own limits better than anyone else.

Find a good low sugar electrolyte drink

Are you currently doing anything to manage it right now? My doctor just gave me a paper at the beginning and walked out.