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921d

Does anyone who has POTS also have fibromyalgia?

Top reply
    • UnluckyUnicorn

      918d

      SwissMissMint, I am happy to chat with you anytime! ❤️

    • UnluckyUnicorn

      918d

      SwissMissMint, I am happy to chat with you anytime! ❤️

    • SwissMissMint

      918d

      UnluckyUnicorn, I just saw your message, and now I wanna look into it with my doctor more. Also it seems like we have a lot of shared conditions, which means I might have a lot to learn from you.

    • Sleepyqueen

      919d

      Same here, both POTS and fibro! Seconding what people have said here about CBD lotions and Epsom salts- I do sometimes need to avoid baths though when my POTS is acting up since the heat makes my dizziness worse, but otherwise it’s usually super helpful

    • Smash

      920d

      I’m just looking for tips! My pain is mostly in my legs and it’s debilitating sometimes. I use my heating pad constantly and I’m thinking of starting cbd cream!

    • chewablepanic

      921d

      I have POTS and fibro!

    • gayandsilentslob

      921d

      Yes!

    • nonbinaryalien

      921d

      I also have POTS & fibromyalgia with a potential EDS diagnosis in the works. I'm with UnluckyUnicorn on the CBD lotion/oil for muscle pain. I'm currently on Cymbalta, Meloxicam, and Gabapentin. Not only does the Cymbalta help with pain but I use it mostly as an anti-anxiety med. I also agree that the Epsom baths help. You can also get bath bombs ot bubble bath stuff to make it more fun. My heating pad is my best friend if I can't get out of bed. Lots of water and salty snacks on hand are always a good idea!!

    • UnluckyUnicorn

      921d

      Smash, I personally love CBD lotion/oil! It really helps relieve my muscle pain. Magnesium is a really good supplement for fibro. So far me and prescription medication aren’t doing well, I’ve had a lot of allergic reactions. However, I’ve heard great things about Cymbalta and Lyrica for fibro. Epsom salt baths are great (even just a foot bath) for relieve some muscle tension. Pacing yourself. Gentle exercise can help. Drink plenty of water (with POTS I’m sure you know all about that). Massages can help, though if you are someone who is very sensitive to touch either opt out or talk to people, I’ve known other fibro warriors very sensitive who said they found understanding massage therapists. It’s really a lot of trial and error. I recommend reading the book “the Fibromanual” it really helped me

    • Smash

      921d

      UnluckyUnicorn, What are some things you do to help with pain? Or medications? My doc gave me an anti-inflammatory for now while we figure things out..

    • UnluckyUnicorn

      921d

      I have POTS and fibro as well as EDS. SwissMissMint (love the name by the way) fibromyalgia is a syndrome with wide spread musculoskeletal pain, fatigue, brain fog, tenderness, sleep disturbances, digestion issues, and many more symptoms. I’m not sure if my fibro was a misdiagnosis for my EDS or not so I just stick with both and both are on my paper work

    • SwissMissMint

      921d

      What is fibromyalgia? I do have both an active POTS diagnosis and a EDS diagnosis which both relate to the heart in some ways.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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