Struggling after organ transplant: Is it supposed to be this hard?

I'm on my first transplant and I still get kidney pains all the time (even after they atrophied) but i get scared when I feel it in my transplant.

I can relate. My first transplant rejected and now have received a 2nd, the first time I had a cramp I thought the worst and honestly even now whenever I feel pain near the site I get anxious. It’s hard staying out if your own head sometime, but I know it’s not good to live in fear

I agree with Toeknee it does get easier. For me it took almost one year. It does take time for all of the medications and your body to adjust. I also had a cluster around 6 months. Hang in there. I had serious depression due to all of this. I am currently celebrating my 10 year kidneversary. You can do it. Please reach.out if I can help at all or just to chat. Meeyah

It does get easier

You shouldn't worry about it but you will worry regardless. Just attend all your appointments and you'll do just fine. You'll have a groovy scar for your trouble just fallow your regimen provided to you by your transplant team.

I completely understand, sometimes I feel as though not much has changed even though I have gotten a transplant. Trying to work and manage transplant care is a hassle. Still depressed and scared to live because of fear of my transplant failing.

depends on your match, if you got a living donor, how long post you are, and even age. all of these are factors into how well your transplant will do. i’m 5 months post and i feel the greatest i’ve ever felt in my life and definitely don’t live in fear. don’t know why they won’t let you have hormones, i’m 29 and i’m on birth control and it’s just fine. a lot of people don’t get their levels or meds settled until around a year post. if you’re super stressed you should definitely be talking to a therapist maybe, talking to someone can really help you work through your internal problems!