namnori

661d

anyone with polycythemia vera

advertisement

Top reply
    • Wilder

      567d

      🤙 JAK2+ PVera here!!! I’m a 38 year old female. My Dr isn’t sure if it’s PV or ET but says it doesn’t matter, my CBCs and smears are ugly, my symptoms are nasty, plus treatment is the same- Hydrea + Xarelto (history of stroke MASSIVE CVST, PE, TIA- lots of thrombosis..) . I’m getting a bone marrow biopsy on Monday. I was recently Dx with MPN, and I’m actually relieved!! I thought I was crazy or somehow responsible for all the signs and symptoms. 😁

    • Homer

      660d

      Hey, I’ve been dealing with PV for the last 5 years. I’m doing pretty well I think, not really symptomatic, only having headaches sometimes. Every few months I get phlebotomy for 500ml, and that’s all. How about you? Is your hematocrit stable?

    • namnori

      660d

      It's my fiance all levels are critical high it says he has headaches night sweats dizzy nausea etc not been diagnosed yet waiting on the jak2 test

    • Wilder

      567d

      🤙 JAK2+ PVera here!!! I’m a 38 year old female. My Dr isn’t sure if it’s PV or ET but says it doesn’t matter, my CBCs and smears are ugly, my symptoms are nasty, plus treatment is the same- Hydrea + Xarelto (history of stroke MASSIVE CVST, PE, TIA- lots of thrombosis..) . I’m getting a bone marrow biopsy on Monday. I was recently Dx with MPN, and I’m actually relieved!! I thought I was crazy or somehow responsible for all the signs and symptoms. 😁

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion