Looking for others with Polycythemia Vera

🤙 JAK2+ PVera here!!! I’m a 38 year old female. My Dr isn’t sure if it’s PV or ET but says it doesn’t matter, my CBCs and smears are ugly, my symptoms are nasty, plus treatment is the same- Hydrea + Xarelto (history of stroke MASSIVE CVST, PE, TIA- lots of thrombosis..) . I’m getting a bone marrow biopsy on Monday. I was recently Dx with MPN, and I’m actually relieved!! I thought I was crazy or somehow responsible for all the signs and symptoms. 😁

It's my fiance all levels are critical high it says he has headaches night sweats dizzy nausea etc not been diagnosed yet waiting on the jak2 test

Hey, I’ve been dealing with PV for the last 5 years. I’m doing pretty well I think, not really symptomatic, only having headaches sometimes. Every few months I get phlebotomy for 500ml, and that’s all. How about you? Is your hematocrit stable?