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MelodyElaine

553d

Hi! So, I recently talked to a physician (who had to Google Ehlers Danlos) and she went through the criteria. When we would get to something she would say "Okay have you ever had ___" and I would say "what is that" or "maybe, is it like this" and she would say "well then you don't have it". I don't understand all the medical words but I don't want to go back and be mean after googling some of it and finding out she was gaslighting me...

Top reply
    • wise

      553d

      if your doctor has to google it, it's time to find a new doctor. your gp should've referred you to a rheumatologist or an orthopedist if she wasn't sure what EDS was instead of pretending she was at all qualified to make that call. definitely leave a scathing review on google though 😊 people deserve to know what they're getting into when it comes to a bad doctor

    • wise

      553d

      if your doctor has to google it, it's time to find a new doctor. your gp should've referred you to a rheumatologist or an orthopedist if she wasn't sure what EDS was instead of pretending she was at all qualified to make that call. definitely leave a scathing review on google though 😊 people deserve to know what they're getting into when it comes to a bad doctor

    • MelodyElaine

      553d

      see, I'm pretty sure I've had MULTIPLE accounts of bladder prolapse against my vaginal wall but she was convinced I didn't because I had never "seen a doctor for it". I was like "I also didn't see a doctor for my very dislocated shoulder and when I broke my thumb in two pieces"

    • royalty

      553d

      I kind of had the same issue. He didnt have to google it but he got the test out and things that I had or could do he would just say "oh kind of" and not mark it. And then at the end he just said I don't have it and it's just anxiety 🙄

      • royalty

        553d

        @royalty by "it" I mean EDS

    • goblin49

      553d

      I would try to find a new physician. Even if you do know you meet all of the criteria, going back to them when they are clearly uneducated on eds is not going to help you get a proper diagnosis or any symptom management. I would suggest looking into genetics or rheumatology; it may take a while to get into an appointment, but it will totally be worth it.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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