Physician Gaslighting Me About Ehlers Danlos Diagnosis

Hi! So, I recently talked to a physician (who had to Google Ehlers Danlos) and she went through the criteria. When we would get to something she would say "Okay have you ever had ___" and I would say "what is that" or "maybe, is it like this" and she would say "well then you don't have it". I don't understand all the medical words but I don't want to go back and be mean after googling some of it and finding out she was gaslighting me...

Your answer

wise

1y ago

if your doctor has to google it, it's time to find a new doctor. your gp should've referred you to a rheumatologist or an orthopedist if she wasn't sure what EDS was instead of pretending she was at all qualified to make that call. definitely leave a scathing review on google though 😊 people deserve to know what they're getting into when it comes to a bad doctor

MelodyElaine

1y ago

see, I'm pretty sure I've had MULTIPLE accounts of bladder prolapse against my vaginal wall but she was convinced I didn't because I had never "seen a doctor for it". I was like "I also didn't see a doctor for my very dislocated shoulder and when I broke my thumb in two pieces"

royalty

1y ago

I kind of had the same issue. He didnt have to google it but he got the test out and things that I had or could do he would just say "oh kind of" and not mark it. And then at the end he just said I don't have it and it's just anxiety 🙄

royalty

1y ago

by "it" I mean EDS

goblin49

1y ago

I would try to find a new physician. Even if you do know you meet all of the criteria, going back to them when they are clearly uneducated on eds is not going to help you get a proper diagnosis or any symptom management. I would suggest looking into genetics or rheumatology; it may take a while to get into an appointment, but it will totally be worth it.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines