Is it just me or is getting a diagnosis impossible?

you’re definitely not the only one! my doctor completely denies my symptoms. i’m fighting for a new doctor but i’m so worried they’ll be the same. your symptoms are valid with or without an official diagnosis imo, because getting that can be very difficult

I've had this happen to me too. I went to the ER for stomach pain and when the doctor heard that I wasn't on any mental health meds with my diagnoses, they started trying to take my phone and put me in the mental health crises unit. I never expressed any mental health symptoms during that visit and it took a lot of convincing to assure them that I wasn't having a breakdown but was actually having physical stomach pain.

finally found my group lol. i'm also hypermobile (no subluxations though i think? definitely no dislocations. not entirely sure what either is like but id imagine theyre more painful than just hyperextension?), diagnosed with fibro, seeing all the specialists. also told it's not autoimmune. i'm coming to suspect that it might be something other than fibro even though it fit me so well at the start... muscle twitching and numbness dont seem to be too common of fibro symptoms. it takes a long time to get the right dx but frankly, i had a much harder time getting my borderline diagnosed... fought for it for 6 years before getting the dx, still can't get it respected - no one believes me when i say i have it. because i'm "pleasant and well-oriented" when i'm in-office. at least for my physical health, i'm still being treated consistently - been seeing more than one specialist a month since the start of the year. i "hit the lottery" with a hospitalization in the first week of jan and maxed out my insurance right quick so, use it while i can, etc...

Disorder

I feel like that too. I have some doctors who listen but the two rheumatologists I’ve had, basically just wrote me off as a fibromyalgia case even though they noted hypermobile joints and I reported subluxations and dislocations which is a clear sign of a connective tissue disorder.