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justpeachyqueen

671d

I had an MRI and CT scan diagnose me with pelvic congestion syndrome while doctors were looking for endometriosis. But my doctors have brushed it off (even though I have all the symptoms). Any advice on where to go from here?

Top reply
    • Birdies

      622d

      I also had them find that I had PCS when they were looking for endo, I saw a vascular surgeon who diagnosed me

    • Birdies

      622d

      I also had them find that I had PCS when they were looking for endo, I saw a vascular surgeon who diagnosed me

    • Kidncatmom

      656d

      Have you seen a vascular surgeon or interventional radiologist?

      • justpeachyqueen

        656d

        @Kidncatmom no unfortunately my doctors minimized it and Idek they were who I was supposed to see until now

        • Kidncatmom

          656d

          @justpeachyqueen unfortunately we have to find our own way around because the doctors don’t really know. I had to call my insurance and ask for the specialist that accepted the insurance.

    • Ange._E

      658d

      My PCS was actually diagnosed via ultrasound. Do you have access to finding an intervention radiologist or pelvic pain specialist?

      • justpeachyqueen

        658d

        @Ange._E I’ve had ultrasounds before but they generally reflect nothing for me. I wasn’t referred anywhere else because the doctors ignored the PCS. Are those the people I should see?

        • Ange._E

          658d

          @justpeachyqueen I’m not a medical professional and haven’t had the diagnosis for long but that’s the two doctors who eventually diagnosed me after no one else could figure it out. IR is used for diagnostic purposes and pain specialists typically gave a more vast knowledge of issues that most doctors don’t typically see.

    • Den_ce

      668d

      Rest child, please

    • Den_ce

      668d

      To bed

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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