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Considering Hysterectomy for PCOS: Seeking Advice

Mbd7262

379d

I'm wondering if there's anyone with PCOS that has had their uterus and/or ovaries removed? I'd like to talk with those who have experience as I am considering it. I understand it's not a cure, that's not my goal. my primary goal is to 100% remove any chance of pregnancy, and I just want to know how my options for that may interact with my PCOS. I would also be interested in the experience of any trans-masculine folks that have had hysterectomy and/or oophorectomy, particularly if you were dealing with PCOS.

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    • dolphinblues

      374d

      I had my left ovary removed due to multiple recurring large cysts and removal of them. The right ovary wasn't so prone to them. Symptoms were lessened but still present. I have fought for total hysterectomy, but every Dr I saw refused. I am now menopausal and going through that is really hard symptom wise. I don't know if this helps, but I wanted to share some of my experiences. I hope you find the answers you are looking for as well as a Dr who listens to your concerns and wishes.

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    • dolphinblues

      374d

      I had my left ovary removed due to multiple recurring large cysts and removal of them. The right ovary wasn't so prone to them. Symptoms were lessened but still present. I have fought for total hysterectomy, but every Dr I saw refused. I am now menopausal and going through that is really hard symptom wise. I don't know if this helps, but I wanted to share some of my experiences. I hope you find the answers you are looking for as well as a Dr who listens to your concerns and wishes.

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    • ninners

      379d

      I’ve been wanting a hysterectomy for a while. I was originally wanting to get my tubes tied, but cysts can still grow after getting them tied, so I don’t want to do that. The only thing holding me back from a hysterectomy is that I don’t want to go through menopause at 23 years old…

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      • Mbd7262

        377d

        @ninners I've wanted one since my early 20s if not since my teens. Some of my reasons have changed and I've had some periods of doubting if it was really the right option, but as I'm now 31 and still certain after over a decade that I absolutely do not want biological children, and now know it would be dangerous for me to deal with pregnancy because of my heart condition, I'm pretty sure permanent is the correct option. Menopause at a young age isn't exactly appealing but at this point with the issues I already have I am starting to wonder if it could really be any worse, and suspecting the trade off might be worth it. But I already have a stack of different things that combine to make me feel like menopause couldn't be that much worse 😆

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        • ninners

          376d

          @Mbd7262 that’s what I’m starting to think too. I have a hormonal IUD and take oral birth control, I haven’t had a period in years. I don’t ever want to get pregnant, it would be incredibly dangerous and I could never be ok with having a biological child and giving them a life with everything I’ve had to deal with. My husband has offered to get a vasectomy, but I don’t think that getting off birth control would be healthy for my PCOS. So it seems kinda useless. I’m so scared of menopause haha I just got married a couple years ago too so the side effects make me nervous

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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