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sapphic

551d

Is it normal for me to have been diagnosed with PCOS but never had a ovarian cyst before? Is it another endo issue? …. I was diagnosed serval years ago after an inpatient stay at the childrens hospital. I was there for something unrelated but learned that my irregular periods and puberty concerns were actually PCOS (is it?) Is it possible for it to be another endocrine issue? Was I misdiagnosed? I don’t believe my testosterone levels are elevated but my periods are still irregular to this date, every few months or so. Also wanted to mention that they have tried to put me on birth control before to regulate my periods but I absolutely refuse due my gender dysphoria. Thanks! Sapphic 💕

Top reply
    • VeggieSandwichQueen

      551d

      I know it’s counterintuitive, but cysts are actually not necessary to have a PCOS diagnosis! You have to have at least 2 of the following 3 criteria: ovarian cysts, irregular or absent periods, & signs of androgen excess (either on labs or physical symptoms like cystic acne and facial hair). The androgen excess also doesn’t have to be testosterone specifically - my testosterone is high end of normal but my DHEA-S is what’s elevated. Definitely get a second opinion from an endocrinologist for more clarity though! PCOS is tricky since there’s no “test” for it, it’s just a group of symptoms. Also, good on you for knowing your limits around birth control with your gender dysphoria👏🏼 too often we’re presented with birth control as the only treatment option and while it can be helpful for some, there are so many other treatment options out there that work well too (like inositol, for example). Best of luck to you!!

    • VeggieSandwichQueen

      551d

      Oops also wanted to add - there are many other endocrine disorders that can look like PCOS, so PCOS is usually the diagnosis you get when they’ve ruled everything else out. Would definitely recommend seeing an endocrinologist!

      • sapphic

        551d

        @VeggieSandwichQueen I appreciate your thoughts! Thank you so much 💕

    • VeggieSandwichQueen

      551d

      I know it’s counterintuitive, but cysts are actually not necessary to have a PCOS diagnosis! You have to have at least 2 of the following 3 criteria: ovarian cysts, irregular or absent periods, & signs of androgen excess (either on labs or physical symptoms like cystic acne and facial hair). The androgen excess also doesn’t have to be testosterone specifically - my testosterone is high end of normal but my DHEA-S is what’s elevated. Definitely get a second opinion from an endocrinologist for more clarity though! PCOS is tricky since there’s no “test” for it, it’s just a group of symptoms. Also, good on you for knowing your limits around birth control with your gender dysphoria👏🏼 too often we’re presented with birth control as the only treatment option and while it can be helpful for some, there are so many other treatment options out there that work well too (like inositol, for example). Best of luck to you!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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