PCOS Diagnosis and Co-Morbidities: Seeking Advice

Has anyone else been diagnosed with PCOS but wondered if something else was going on. As in, some symptoms aren’t fully explained by PCOS diagnosis? Does anyone have co-morbid Cushing’s? https://www.endocrine-abstracts.org/ea/0015/ea0015p225. I suspected EDS (which is why I put it in this profile) but I have some abnormal labs which could describe Cushing’s. I’m just so exhausted of being sick and exhausted 😩. Any advice on how to advocate for myself with doctors is greatly appreciated as well

Your answer

galaxychild

2y ago

I had also thought of Cushings but had a Cortisol test where they suppress your adrenals with a pill and check their levels. It was normal. I was looking into POTS because I have tachycardia and low blood pressure and just a bunch of weird symptoms. I saw that EDS and POTS can be pretty comorbid. As far as advocating, don't back down. I say do your own research and ask for tests. It sucks we have to fight with doctors to get proper care

Mommaspoondani

2y ago

I got diagnosed with congenital adrenal hyperplasia by my endocrinologist the exact time I was diagnosed with pcos by my OBGYN. I was 18; both agreed on hypothyroidism after testing everything including my cortisol to rule out Cushings. Treatments for CAH were pretty obsolete so I began treatment for non-traditional PCOS due to lack of progesterone. I have had symptoms of POTS and hyper mobility my entire life but it wasn’t until I was hospitalized due to a huge flare of POTS in 2015 and subsequently diagnosed with hypermobility by a pelvic floor specialist (you soul Cysters know about pelvic floor issues and pain), degenerative discs disease/ OA the following could years that my Specialists considered hEDS as well- with my advocacy! Keep advocating, there is hope!

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