See Alike in...

Alike App

Browser

Prof. Varda Shalev

1043d

After decades of patient care, I have no doubt in my mind that the patient is my primary partner. A physician cannot achieve a good medical outcome for a patient without the patient being involved and active both in the diagnostic phase, in the decision-making phase and in the treatment phase. The second most important player is data. In medicine, data is not just another buzzword, it's a life-changer. Today, we understand that it is imperative to make medical data accessible to both the doctor and the patient. Patients who have access to data are more engaged, more knowledgeable, and achieve better treatment outcomes. The doctor-patient-wisdom of the crowd triangle is the key to success. I encourage you to learn as much as possible about yourself and your treatment plan through your medical records and take control of your life - and remember, I am here for any questions you may have along the way.

Top reply
    • KratomEater

      391d

      @Art_therapy my partner has been dealing with a UTI for a very long time. No antibiotics have helped. Starting to get worried. On top of all the other things women have to deal with, now this?

    • chemelle78

      392d

      💕 xxx

    • Craigie

      400d

      Sure Data is important, but needs to be a large data set to gain better outcomes. Sorry I’ve just dived right in after signing up moments ago 😂👍🏼😊

    • BraeburnGirl

      404d

      This is so important! If you don’t ask questions or if you don’t feel comfortable with your care team, you should absolutely find a care team that works for you! I’ve “fired” doctors that I didn’t feel were listening to me or cared about my needs as a person. If you don’t “click” with a doctor or a clinic, it’s well within your rights as a patient to find other providers that will work for and with you.

    • psw

      404d

      I have told many drs I know my body better than anyone. I've lived with it 53 years. While I acknowledge the value of medical training, it is based on averages of many. I tell my drs it's my responsibility to know my body and it's unique statistics. I have kept journals of what I put in and on my body so I know what reacts. I read labels on everything. It's my responsibility to know how my body reacts. It's my drs responsibility to advise based on their knowledge. I treat my body like a machine. I own the owners manual and it's my responsibility to know how this machine runs.

    • Asif

      405d

      Hi

    • Asif

      405d

      ❤️

    • Art_therapy

      412d

      It took me going through my records to find that I had a UTI in the hospital that i wasnt treated for or told about and three months later it was causing me to have a fever and other nasty symptoms as my chronic illness was flaring (the uti was mostly asymptomatic). Please look at your test results, its so important

      • KratomEater

        391d

        @Art_therapy my partner has been dealing with a UTI for a very long time. No antibiotics have helped. Starting to get worried. On top of all the other things women have to deal with, now this?

      • Overcomer

        392d

        @Art_therapy 😥

    • LadyBrownharth

      414d

      my dietitian says about 25% of your calories if your using healthy carbs. But it changes by age, weight height and goals. https://www.calculator.net/carbohydrate-calculator.html?ctype=standard&cage=25&csex=m&cheightfeet=5&cheightinch=10&cpound=160&cheightmeter=180&ckg=60&cactivity=1.375&cmop=0&cformula=m&cfatpct=20&printit=0 this might help. It doesn't show 25% it shows 50% though.

      • Overcomer

        413d

        @LadyBrownharth Thanks so much for information

    • Beautifuleve

      414d

      I find that I have to keep learning about the different disorders I've got as due to specialist's not giving me any information explaining or ask if I have questions.

    • Cin

      417d

      ❤️ thank you

    • KratomEater

      420d

      I wish this was how all doctors approached patient care!

    • chazza

      420d

      👍

    • SecondChance

      421d

      Absolutely

    • RMSjohns

      421d

      I have had both, cortisone and synvisc. The 2nd one lasts 6 months and I am bone on bone!

    • Kingsdaughter

      422d

      I need to know about the cortisone shots are they good for arthritis are can it make the situation worse in your knees?

      • sorenachy

        419d

        @Kingsdaughter it depends on how you react to it. It worked great for me for about 5 days. But I had fantastic success when I had them in my back.

    • Savbear

      425d

      ❤️

    • yumzy199725

      440d

      I wish I had a cardiologist who listened to me instead they completely disregard anything I say which is so frustrating. 😔. Don't feel confident or comfortable telling them anything they just act like how I'm feeling dosent matter which I don't agree with. I'm sure I'm not the only one who gets treated like this atleast I hope I'm not 😳😐

      • Overcomer

        425d

        @yumzy199725 I have had doctors like that and one of my doctor informed me not to keep doctors like that because I am just a number to them. Since then I don't keep doctors who can't team up with me for my good

    • pjdocker

      441d

      I was reading some posts and I noticed that some people are or have been on a steroid regimen. I am too. But only 5mg a day. But back a few years ago I had massive amounts of Prednisone because I was sick most of the winter. What happened was that it knocked out my immune system. Now I have to infuse anti-bodies weekly. I don't mind and I've certainly gotten used to it. It's not difficult to do yourself at home as I do. But if you have had high doses of steroids I would ask your doctor to check your anti-bodies and make sure that your levels are up there. It saved my life. I rarely get sick anymore. I had covid December of 2019, before it was in the news, and I struggled in the hospital for a couple of days but I got over it and am healthy today. I did not and will not take the covid vaccine though. Message me if you would like to learn more about the infusions.

    • Bijoux_bean22

      441d

      I have only ever had one dr not screw me over or try to kill me, so how exactly am I half of a partnership to these ppl? (These were supposed to be good drs, the one at Tufts was the most recent to almost kill me so…)

    • slydog

      442d

      👍

    • yumzy199725

      454d

      This is so true 🙌❤️

    • Tracks

      458d

      ❤️

    • gooomiho

      458d

      👍

    • Cin

      458d

      ❤️ ❤️ ❤️ Great post! 👍

    • Chadwick108

      463d

      This is right up our alley for all of us who have been through so many Dr's and treatments and medicines. Hung with the ones who are willing to help and go out of their way to understand and what's best for illness. It's just such a difficult illness since it seems to affect people differently

    • squeakthis

      463d

      I started a new medication a couple months ago and I noticed that my blood pressure has been below normal. I don't know if it's the medication or stress. Will respridone cause low blood pressure

    • squeakthis

      463d

      I wish more doctors felt this way. I've had to fight to be heard and I know someone that was told she was the patient to figure out what works best for her or what she thinks works best for her. It's very frustrating that not all doctors are like you.

    • Trudie_tootie

      472d

      I wish more doctors felt this way! I've had to fight to get any info. Like imaging that I can actually view. It's so frustrating! 💕thank you for supporting us!

    • Tree20

      472d

      Are you still in this app?? I have a question for you 🙂

    • jmr2191

      472d

      I've found learning how to speak my doctor's language and developing a trusting foundational relationship made all the difference in working with my medical team for the best possible outcomes.

      • Overcomer

        472d

        @jmr2191 This is something that I am slowly learning

    • Burleson

      473d

      We will all live long🙏

    • sorenachy

      477d

      Absolutely! I have been as much as an advocate for myself and those around me as I can be.

      • Denotchka

        415d

        @sorenachy Good going. 🙏🏻 Don’t quit. You’re definitely needed.

      • Overcomer

        477d

        @sorenachy I try to do the same but to advocate for myself I fall short. Plus medically the system is confusing to me

    • Overcomer

      477d

      If you are still learning about one conditions and are always tired what should one do? Years ago doctors used to educate but now they don't. Plus what if doctors ignore one medicine list and keep adding and almost caused a drug overdose because one trust the doctors?

      • sorenachy

        477d

        @Overcomer I actually caught my doctor trying to prescribe me a medication that would interact with asthma, and she didn't prescribe it but something else that wouldn't. Now I make sure I ask if this new med will affect anything I'm on or aggravate one of my conditions.

        • Overcomer

          477d

          @sorenachy Also how did you know that your doctor was? Did you Google etc? Please educate

        • Overcomer

          477d

          @sorenachy That is scary when we go to a doctor who calm by oath to care about patients that walk in

    • Joe3865

      477d

      ❤️we all will live long

    • Joanie1954

      478d

      Thanks doc! You have your medical expertise but I have lived in this body for 68 and I am the expert on this body. It truly does need to be a partnership!

    • Emilio22

      479d

      Can alcohol liver disease cause mild body itch ... I thought itching occurs only in cholestasis

      • Denotchka

        478d

        @Emilio22 It also happens if you phosphorus is too high.

    • 100Percent_K

      496d

      My MIGS has said that while she learns a lot from research, she learns a lot from her patients as well and she loves when they come in with ideas and questions. Makes her feel like they’re engaged in their healthcare which makes her happy

    • Denotchka

      496d

      I enjoy the study of the Bible. However when I get stuff like thi, it’s really exciting.

    • Wondercell

      579d

      My feelings exactly. However I've learned so much I never knew b4. Hoping to have found my hero in Oct. Seeing an autonomic disorder specialist. Hope to report some good news after!

    • JPM

      585d

      I’ve read where Fenbendazole can cure cancer I’m having trouble with my doctor wanting to put me on this fenbendazole I would like your opinion on this

    • Wondercell

      618d

      ❤️ exactly!! I've been my own researcher for 6 years because I can't get one doctor interested nor excited to challenge themselves with my case. I've learned so much but hello I'm still not a doctor and I still need one.

    • ThickAndTired

      618d

      Thank you for this! Would you be able to post signs that you’ve found a good/understanding doctor/PCP? I feel I’ve been fooled a lot by doctors that seemed to have my best intentions but actually were only concerned about their own opinion or discretion 😥

      • Denotchka

        460d

        @ThickAndTired Some of them are getting money from BIG PHARMA as well and they’re more interested in the MONEY than proper treatment so be careful looking for a PCP.

      • sorenachy

        460d

        @ThickAndTired when you are looking for a new doctor, go to the front desk and tell them you are looking for a doctor that listens to their patients and explains things. And remember that if you don't like a doctor you don't have to stay with them (usually). If you feel your needs aren't being met you can also tell that doctor that you want them to document in your chart while you are sitting there why they won't discuss what you feel needs to be discussed, whether it be pain meds, a handicapped parking permit, etc.

      • Crispybuffalo145

        462d

        @ThickAndTired this is the reason why I struggle to trust anyone in the medical field.

    • Gastro

      618d

      👍❤️👍

    • beanbean

      631d

      🤗

    • Paladin

      632d

      🙌👍

    • PJlove

      632d

      ❤️

    • Ziggythedrummer

      632d

      Are you strong physically

    • Denotchka

      637d

      I also have to be careful with caffeine.

    • spacejunkie

      637d

      🙌 💯 agree

    • CheleKelly

      637d

      Do you know much bout EMDR treatment? Im kinda considering hypnotic but I don’t my insurance covers and I have no funds.

    • needempathy

      638d

      So true Varda. People, READ YOUR LAB WORK. ASK FOR A COPY. FOR 10 years not ONE, of my medical team did anything about my high calcium score of 11.9. MY kidneys were failing, GFR of 48. So I did research on the computer and I found out I had HYPERPARATHYROIDISM. My symptoms were depression and fatigue and I didn't want to live. I developed hypercalcemia which caused my appendix to attach to another organ. The pain was bad. I got a surgeon who removed 3 parathyroid glands. Better now

      • Denotchka

        496d

        @needempathy Definitely.

      • spacejunkie

        637d

        @needempathy 💯 agree, I am very informative about my health. I was just telling my MD that he probably thought I was crazy just last month for having him check my A1C. But my body just hasn't been feeling right and sure enough it came back 6.0. he now believes everything I have to say and really listens to me. Although he is just my main doctor, I have 7 others.

    • Dee364

      638d

      👍. Ok. My primary Dr had a huge problem getting the endocrinologist to the phone to talk about my case. The endro prescribed a new med which pushed my blood pressure to low. I'm talking both # below 100 for blood pressure, the bottom # below 60.

      • Denotchka

        638d

        @Dee364 Yikes. Stay away from that and keep your blood pressure stable.

        • Dee364

          638d

          @Denotchka intend too! Ended up in ER last month due to low blood pressure.

    • Jazzie1

      639d

      Thank you! How would you recommend tracking test results? I have them online for the past few years however it doesn’t give a full picture as it’s missing previous years so I was hoping to pull it all together however not sure the best way to do this without manually loading it into excel…

    • Pammyb

      639d

      One of the problems I see as a patient is if you have multiple conditions, with doctors being so specialized, it's really hard to have one (ie a PCP) who understands the whole you!

      23

    • Denotchka

      651d

      I decided I want stem cell treatment for my APKD and ESRD 5 but not after they forced me to get both catheter and a fistula which still need final approval and getting rid of the catheter. I'm wary of just doing surgery all the tim. It disrupts the electrical system of the body.

    • babysmiley

      745d

      🙏

    • babysmiley

      745d

      😥

    • Natalie

      930d

      What are the recommended amount of carbs one who is diabetic(type2)should eat per meal?

      • Pammyb

        639d

        @Natalie originally I was told that the # of carbs should be 10% of the number of calories recommended for you personally. So if you are on a 1,500/day calorie intake, you can do 150 carbs (or grams) a day. But personally that's always been a little high for me.

    • DogwoodPlantJuno

      938d

      How do we see the newest treatments on our condition

    • Abby

      972d

      🤗 🤗

    • viv

      973d

      💕

    • Selfie

      1041d

      👍

    • Pushupsnpumps

      1042d

      🙌 🙌 🙌 absolutely!

    • Rocky

      1042d

      ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion