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Alice_Marie

746d

Anyone had any major surgeries or procedures done to drain or help a pancreatic pseudocyst?

Top reply
    • chaospenguin

      729d

      Yes, 2017. First they went in endoscopically and tried the drainage into the stomach but it didn't work so they went in through the side and I had a drainage bag for a couple weeks. It was huge and they said it was about to rupture. I suspect I have another.

    • chaospenguin

      729d

      Yes, 2017. First they went in endoscopically and tried the drainage into the stomach but it didn't work so they went in through the side and I had a drainage bag for a couple weeks. It was huge and they said it was about to rupture. I suspect I have another.

    • aleboo

      734d

      I had several major surgeries last year, 11 drains to drain out infection. Traumatizing to say the least

    • NanN

      745d

      Do any of you with pancreatic problems have cystic fibrosis or PCD ( primary ciliary dyskinesia)? I have been using prescription pancreatic enzymes to keep my chronic pancreatitis in check. I do have some pancreatic cysts, but they haven't been "drain-worthy". You guys are rock stars 🌟!!!

      • AuntSquirm

        745d

        @NanN Are you taking Creon?

        • NanN

          744d

          @AuntSquirm ~ Yes. I do take Creon. I couldn't remember the name when I wrote that last post.

    • Alice_Marie

      746d

      Oh my! I just have one GIANT one. I had major surgery to have my stomach sewn to pancreas but scare tissue closed the hole. Now I’m dealing with stents. Ugh!

    • AuntSquirm

      746d

      I was in hospitals for half the year and had a picc line to get really strong daily antibiotics. Once I was out of the hospitals I had to do daily infusions to continue working on the infection. My white blood cell count was 52,000.

    • AuntSquirm

      746d

      I had 6 or 7 cysts and had to have 3 different drains, all different times, to get rid of them.

      • NanN

        745d

        @AuntSquirm 🙏🙏🙏🙏 Wow!

    • Alice_Marie

      746d

      That’s awesome! I have a stent in right now to drain it now, I too got an infection and had to have it redone. I’m hoping this fixes everything.

    • Missa526

      746d

      No major surgeries or procedures but I did have a drain put in a big one on my side last October, it was uncomfortable and it got infected, and I ended up needing a blood transfusion. They put in a different one after all uthat happened and after going to the hospital at the beginning of September I haven't had to go back after 7 hospitalizations between May and October ranging from 4 to 13 days.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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