Have you tried Lyrica? It's been a god send for me for many years.

I often have a lot of negative reactions to medications, but also have significant chronic pain. Some approaches that aren’t medications or that I use with lower doses of medication include heat, kt tape, braces, mobility aids, and some topical pain relievers which I have found to be more helpful recently. Also if you have the ability to do so scheduling breaks into your day for self care, and potentially changing things in your daily routine that may aggravate pain symptoms. I hope some of this is helpful and I am happy to clarify things or answer any questions. Chronic pain can feel like a never ending battle especially during flare-ups I hope you find methods of pain management that work for you 💖

Have you tried cannabis? Assuming it is available in the place you live. It's not a miracle cure but it helps me with so many different EDS symptoms and with little in the way of side effects: muscle spasms, nausea, pain, sleeplessnes