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RonJohnson

689d

Had anyone gotten an ovarian vein embolization or other treatment from an interventional radiologist?

Top reply
    • Beautiful_Disaster_

      653d

      I have I had 15 coils placed in gondal veins bilaterally 😭

    • Beautiful_Disaster_

      653d

      I have I had 15 coils placed in gondal veins bilaterally 😭

    • Birdies

      676d

      Okay thank you because someone told me the neck and I started to freak out. I see the vascular surgeon right after. I'm really hoping they find something because I've been struggling pain wise. Not sure if anyone else has this symptom as well but my feet turn purple, sometimes just my left one and my right stays pale.

      • RonJohnson

        676d

        @Birdies My feet do the same but it’s both for me, I’ve had this symptom since I was like 12! It’s crazy how many times it was written off as “bad circulation/not concerning” my GPs but it’s my understanding that it’s a PC symptom

    • Birdies

      677d

      I'm having a CTV done this Thursday and am very nervous. Does anyone know where they insert the contrast?

      • RonJohnson

        676d

        @Birdies I was super nervous too, but it went really quickly and was easy and painless. I didn’t even have to go into the big machine it was a small ring I was pulled in and out of laying flat on a bed

      • RonJohnson

        676d

        @Birdies I just had an IV line and they have you hold this bar to keep your arms up. The contrast was added to my IV electronically from a machine and it feels weird- like a hot sensation moving through your body. They Told me I would feel like I was going to P my pants, but I had just Peed before I went in and for me it was more of an almost burning sensation in my bladder but it only lasts for a few seconds

        • RonJohnson

          676d

          @RonJohnson 👍the IV line was just a typical one in the arm

    • HeyReese

      684d

      Also, QueenLady, a pelvic floor specialist is not the best for PCS. I would speak to at least one vascular specialist. They’ll do a CTA (special type of CT scan) &/or a diagnostic venogram (minimally invasive procedure)

      • QueenLady

        682d

        @HeyReese thank you!

    • HeyReese

      684d

      Curious too! I’m about to get one this month 😬. I’m super nervous because I have an autoimmune disease & I can’t find any medical studies regarding coil migration in the long term

    • QueenLady

      686d

      Also curious on whether anyone has had ovarian vein embolization!

      • RonJohnson

        686d

        @QueenLady I am going to get one and will let you know how it goes! I have an MRI with contrast this Monday and will be getting the procedure ASAP after

        • QueenLady

          686d

          @RonJohnson good luck!! It’s my understanding that this is the only effect long term treatment. I’m on the pursuit of finding a place that does this. My OBGYN referred me to a pelvic pain clinic and I can’t get in there until November! Sadly I don’t I even think that’s where I need to go :/ will be scheduling an appt with my general practitioner to see about other options

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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