Optic neuritis is a damage optic nerve. My vision is very blurry, I can’t drive anymore. My eyes are super sensitive to sunlight. If you were right in front of me I could see your face and eyes, etc. in a blurry way, but I couldn’t really see your eye color or iris. It’s all just a blur. I can’t recognize people from across the room. Those who have optic neuritis due to MS typically have pain and unexpected vision loss in one eye. . Mine presented a little differently. I had no pain and my vision loss happened in both eyes, slowly over a 2-year period.

The brain bleeds decreased my peripheral vision by a lot, but as the years have passed, that peripheral vision on my field of vision studies has actually improved. It is rare for me to have any of my window blinds open. I can only sympathize with you, as your condition seems to be more severe. I have been very very blessed. I haven't had a brain surgery in almost 19 years. I had 9 between birth an 15 years, and then 22 between ages 21-29, and I had 9 other surgeries that weren't neuro related. I haven't had to have any major surgeries for several years, for which I am very thankful. Juggling and managing the myriad of symptoms is no joke. We all have our stuff, right? The cool part of it is to learn about other people who go through relatively the same thing, or something like it. Ya don't feel like you are in outer space just existing, with no one else. This is a place to find similarities rather than just being by your lonesome in your pain and suffering. As far as I can tell, this is a meeting of the minds as far as chronic conditions is concerned. Thank you for what you've shared.