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Hammy.Bug

762d

I’ve been experiencing numbness/tingling in my arm/hands/fingers for about 2 years now on & off. I’ve had an EMG done & it was normal. I’ve had MRIs, chiropractic treatment, etc. & nothing helps it. Does anyone else experience this? I don’t even know if it’s related to my EDS but no one can tell me why it’s happening or what to do to help it.

Top reply
    • Hammy.Bug

      751d

      @Murbear, yes! My neurologist seems to think that there’s no real cause for it since the EMG was normal and has said it’s probably related to my OCD/anxiety issues. I don’t think it is

    • Hammy.Bug

      751d

      @Murbear, yes! My neurologist seems to think that there’s no real cause for it since the EMG was normal and has said it’s probably related to my OCD/anxiety issues. I don’t think it is

    • collapsingdoll

      756d

      Yes! I have been dealing with that since before my EDS diagnosis. For me at least it is neuropathy(not sure if small fiber or whatnot though). My is bad enough that I am treated for it. I was originally diagnosed and treated by a neurologist for this.

    • Murbear

      758d

      Do you have pain with the numbness? It could be neurogenic thoracic outlet syndrome

    • Hammy.Bug

      760d

      Thank you for your thoughts/input, guys! I’ll definitely check into this further.

    • AeL

      761d

      I second Small Fiber Neuropathy, especially with my POTS. I don’t remember the exact statistic that my doc gave me but I think it was 2 of 3 POTS patients have it (Apparently I’m one of them), the POTS clinic I go to has the skin biopsy for it as part of their full work up because it’s so common. Mine is mild so it’s not treated (I also have no idea what the treatment would be) but you should definitely ask about it.

    • Jadie

      762d

      This sounds like my small fiber neuropathy. I have POTS so its triggered more from blood circulation. I have it in my limbs, severely in my hands as I have more EDS like skin there. If its not correlating with blood circulation it could with weakened blood vessels that EDS can cause on its own. A skin biopsy can tell if thats what it is if you feel the need to be tested. Other than that I have no clue.

    • heyputnam

      762d

      I experience this all the time too, my doctor said it could be a form of neuropathy. Does it happen at any specific times or with any movements? I know for me my legs are usually numb and tingly most of the time but then when I bend my knees my feet get really tingly and when I raise my arms about my head the same thing happens with my hands. I’m getting an musculoskeletal ultrasound this Monday to check my veins for swelling to see if that is a potential cause too

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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