catstronautxx

503d

Has anyone found what works best to help with non-epileptic seizures? I feel like neurologists really released me with “good luck, go to therapy”(which I do) but it’s been a year now and they haven’t slowed.

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Top reply
    • Delia.Von.Brandt

      484d

      Yep, I get the same answers. Mine have slowed down, but I'm on a bunch of meds to try to control them - gabapentin, lamotrigine, topiramate, clonidine, clonazepam, and sertraline. I also use medical marijuana. All has helped, none has completely stopped them. I also do CBT weekly and have tried EMDR. I've sort of resigned myself to the fact that I'm always going to have them. It's also been over a year for me too.

    • ShadowFoxy666

      503d

      ❤️

    • Kitcat2000

      503d

      Well I am the same way but I also have diabetic seizures so I got put on Lamictal 150mg and it has worked amazingly

    • MandazInTC

      503d

      I got the same answer recently and am now going to see another neurologist. They put me on antidepressants swearing up and down these were all psychogenic seizures. When they treated my migraines another way instead if waiting for the botox to work, all of a sudden my seizures slowed down immensely. Didn't stop, but wow, it's amazing how my head stopped hurting and how I stopped seizing as much.

      • catstronautxx

        503d

        @MandazInTC that’s interesting, I have migraines too but had to stop the meds I was given because of a GI disease.

        • MandazInTC

          503d

          @catstronautxx maybe look into a different medication. I was given Topamax which is a daily medication.

    • PinballGuy

      502d

      In my case, I have non epileptic focal seizures from a TBI, which are controlled by Depakote. I was allergic to Dilantin and Tegretol though. Depakote has some hefty side effects, but controls my seizures so I live with it. I can't say what would work of course, but I say don't give up researching, asking your doctor and finding a new doctor if they won't help. I've learned to question doctors more over the years because I know what is or is not working for me. Good luck.

    • Galadwhen

      501d

      I had a very similar experience. One doctor prescribed Lorazepam which I take when my anxiety levels are high as that is usually when I have a seizure. It has really helped me. It helps with both the anxiety and seizures.

    • poodlelover28

      501d

      I found that getting on the right concoction of meds for my anxiety, depression, and bipolar helped significantly reduce my seizures. Mine are stress induced. I went from up to 14 seizures in one day to one every two months to a year plus.

    • Anna.Pugh

      495d

      I think it would depend on a person's specific triggers. Non-epileptic seizures aren't always related to a psychological factor. I'm treating mine with sensory overload prevention, stress management, and not over working.

    • wise

      495d

      I started gabapentin for my fibromyalgia and I haven't had a seizure in over a year! the only time I've had a seizure while on gabapentin was during a bad asthma attack, which caused mild hypoxia and triggered a seizure (a complication of my heart problem). anticonvulsants are something you can ask your doctor about if you haven't tried them already

    • Shenandoah

      489d

      I had a similar experience. I'm sorry. It's so frustrating and feels like we are beside ourselves. CBT is helpful and just talk therapy to help process the diagnosis. A big thing is identifying triggers, and trying to get a handle on them. If stress triggers learn coping skills to help manage. If exhaustion, prioritize sleep routine. Etc

      • catstronautxx

        487d

        @Shenandoah it’s honestly just nice to feel less alone about it all. I’m also doing CBT and trauma therapy to help. It’s slowed them down slightly!

    • Delia.Von.Brandt

      484d

      Yep, I get the same answers. Mine have slowed down, but I'm on a bunch of meds to try to control them - gabapentin, lamotrigine, topiramate, clonidine, clonazepam, and sertraline. I also use medical marijuana. All has helped, none has completely stopped them. I also do CBT weekly and have tried EMDR. I've sort of resigned myself to the fact that I'm always going to have them. It's also been over a year for me too.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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