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Bantam

99d

With my SMAS I'm 15 pounds underweight, almost malnourished for my size. They're going to put in a NJ tube, but now I'm wondering if a j tube makes more sense. They say that's more long term, and easier to live with. But the possible complications my dr listed were unnerving. I have food sensitivities, and it might just come down to which formulas I can tolerate and which tube diameter they're better with. I'm just looking for perspectives or experience, because I'm overwhelmed.

    • briharris013

      55d

      i would say start with the nj to see if you can even tolerate the feeds into your jejunum. the placement isn’t horrible and it can be removed easily if it doesn’t work for you! that way you can also experiment with formulas :)

      • Bantam

        55d

        @briharris013 Thank you!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One user shared their experience with different types of feeding tubes, stating that they started with an NG tube but only had it for 3-4 months before they converted to an NJ. Because they were still losing weight and vomiting their tube up, they placed a GJ tube in their abdomen. That one had issues as well but lasted for about 3 years. Now they have a j tube and it has done an okay job of maintaining their weight, but it does have problems of its own (pain, leaking, etc). Another user mentioned that they had an NJ and was supposed to only be on it for four weeks or so, but it ended up turning into about three months. It was really bothersome and nauseating, but they didn’t get nauseous from eating anymore.

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