Next Steps for Three Meningiomas Found on CT Scan

See if they can do gamma knife or Cyber knife surgery-less invasive

The pulmonary arterial hypertension also Makes it difficult somedays too to tired to do anything

I already have the pah so ya getting the news of the 3 meniginomas was like getting hit by a truck i have family that doesn't see it as serious and just writes it off i don't wanna scare my other half so i really have no one to talk to either so I doesn't help

I just want to tell you that it’s really important to see a neurologist and neurosurgeon if you’re deciding to go with a craniotomy I mean that’s what they do they do brain surgery so they’re going to push that that’s why I seeing a neurologist first and getting the MRI is going to be your best but I can only speak from experience and that was the process that I went through

They found them when my primary doctor sent me to the er while at an appointment blood pressure was really high was worried about heartattack and stroke so the did a cat scan all I've been told is that I have three meniginomas and doing blood tests tommorow I can't remember the name of the tests but aren't ordinary he had to call the lab to order them I kind feel sorry for him think he was seeing it for the first time too and didn't know what to tell me since he didn't really know anything either so I've been googling witch I know I shouldn't do but tried to stay on reputable sites like mayo clinic and John's Hopkins they both say that craniotomy is a common treatment and they make a craniotomy sound like getting your appendix out don't think radiation will be and option in a small town have too go to salt lake for them and I don't drive and already on disability so it would be hard to get back and forth plus with right heart damage and the pulmonary arterial hypertension waiting could be risky just can't wait to have all the answer's

How did you find them ?

Pulmonary arterial hypertension with lung disease is what PAH stands for I'm in a small town so hard to get different opinions here and I don't drive anymore but I trust my heart and primary doctor not gonna lie scared to do the craniotomy but it seems like the most common treatment for them scared to wait and see because the PAH could get to a point that my heart won't handle surgery then I'd have to deal with both just alot of decisions

Hi I’m sorry for what your going through. I have a Meningioma also and had a craniotomy in 2018 they weren’t able to resection the entire tumor so I still have about 30% in there. My advice would be to get multiple opinions from neurologist and neurosurgeons. Try to find ones that specialize in tumors. I was on wait and watch for a year and half because I wasn’t ready to have a craniotomy. But once I started loosing my vision I decided to do it. I got 3 opinions and prayed a lot. I don’t know what PAH is? Where do you live ?