Newly Diagnosed with Lupus: What's Next?

Joint pain regularly but with sun exposure I get worse joint and muscle pain, I feel like I have the flu. Also migraines, fatigue, and weird scaly skin on my face around my nose and up towards my right eye. I know there's more but that's the main things that come to mind right now. Oh brain fog...brain fog galore, my memory sucks and I can't get words out properly alot

Do you mind if I ask what kind of symptoms you have?

I’ll say just getting familiar with your body and learning to listen to it. Remembering that it’s ok to say ‘NO’ when your not feeling good & always put your health first. Nobody feels your pain & discomfort but you. Take your meds and always reach out to your healthcare team whenever your not feeling well and need to see them. Sometimes we think it’ll get better and it could be getting worse & we always try to avoid that. This disease is one that mimic a lot of other illnesses and we can’t let anything slip by use because once the damage is done, there’s no repairs to fix it (kidney, heart, liver, lungs, brain) it’s only maintenance from that stand point.

I was just diagnosed in January. After some trial and error, we finally found the right meds. I am on immunosuppressants and it has made a huge difference. My energy has increased and I got back to almost normal. I am currently going through my first flair since being diagnosed and it has been a lot quicker to resolve.

I'm in the same boat, it's a bit overwhelming with all of the information available