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Oscar_F

757d

Hello. I got this app from an ad on Instagram haha. To make it short, I’m the first in my family from both sides to get diagnosed with an auto immune disorder so it’s new, i dont have people to relate too and i wanted to try this app. Had anytime used this app for some time that can give me pointers?

Top reply
    • Oscar_F

      749d

      @KayCeeBee thanks for sharing! I hope the best for you and it all goes well, Godspeed

    • KayCeeBee

      750d

      Hey, same thing, nobody that I’m close to has it, so nobody that I’m close to completely gets it. I got diagnosed almost 8 years ago when I was turning 25. When I was first getting diagnosed i was so scared and I didn’t want to talk to anyone who had it. I know everyone’s experience is different and I didn’t want to hear the horror stories when I was already so scared. I have been incredibly lucky and haven’t had many clear symptoms, though I am definitely heat intolerant. The way that the disease affects my life the most though is just the appointments, the tests, and the weeks that I have to spend on the phone whenever my insurance changes. I take Gilenya, so I signed up for their co-pay assistance program. Obviously America has a serious healthcare cost problem, I once had a representative at the specialty pharmacy tell me that my monthly refill for one of the meds would be 15k, but I’ll save my soapbox for another day

      • Oscar_F

        749d

        @KayCeeBee thanks for sharing! I hope the best for you and it all goes well, Godspeed

    • Gabster

      757d

      Hey there! I’m actually second generation diagnosed with MS. I never understood what my dad was going through until I went through it. This app is the first for me doing anything like this but willing and hoping to build some great relationships with everyone!

      • Oscar_F

        757d

        @Gabster ahhh same here! I never thought of going on an app designed like this but I’m also willing. It’s definitely a good way to connect with others

    • emmy1967

      757d

      Hi Oscar I also found app on Instagram. Newly diagnosed with MS... just learning the ropes and beginning treatment. Happy Tobe here and to meet new people.

      • Oscar_F

        757d

        @emmy1967 It’s so nice we Can all connect. If you have any questions that maybe i can help with along ya recent diagnosis, feel free to ask

    • Cosi

      757d

      Hi Oscar. I also just downloaded this from app from Instagram. I’m a newbie like you! When were you diagnosed if you don’t mind me asking?

      • Oscar_F

        757d

        @Cosi i was diagnosed at 16 and I’m not at 21. Definitely a trip but this app lets me connect with people that have the same condition!

    • Natascha

      757d

      Hey Oscar same I downloaded this app from an ad too but haven't gotten used to it yet

      • Oscar_F

        757d

        @Natascha we’re in the same boat haha. Im learning it all right now

        • Natascha

          757d

          @Oscar_F Ikr and it hasn't been long since I got diagnosed cuz that was last year and I had just turned 18 so I was like wtf

    • Biggs

      757d

      But msworkouts.com taopatch.co and Mshope.com will get you started to back to your life hope this helps brother Peace!

      • Oscar_F

        757d

        @Biggs thank you! I really appreciate it

    • Biggs

      757d

      I’m in the process of receiving my physical therapy back due to my neurologist didn’t want to help me because I’m not taking medicine lol

    • Biggs

      757d

      Peace Oscar I’m same all I do is take herbs eat only things that Grows Akaline water and exercise to my limit

      • Natascha

        757d

        @Biggs hey do you get painful back pains and what do you do for that

        • Biggs

          756d

          @Natascha sometimes I do I use my heating massage pad it helps every time

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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