New to the App and Struggling with Chronic Illness

I'm new here. checking out this app for the first time. really struggling with my MS, trigeminal neuralgia, and lupus are all acting up due to an enormous amount of stress. I have done 2 rounds of oral steroids. I'm just looking for People who understand.♥️

Your answer

Hortense

2y ago

@kirky - what exactly is tai chi? Is it gentle? I do have SOME mobility issues... I should look into it anyway.

Kirky

2y ago

Absolutely! Very gentle. I have to be very gentle with my neck in order to keep from having a vertigo or anxiety attack. Tai Chi is perfect for it. Think of it like a moving meditation. It is a Chinese Martial Art that uses very slow movements. It derives from Qi Gong, which is much simpler too. You can even do it seated, which I tend to do! There are miracle stories behind it

Hortense

2y ago

@Wilconquer - hi there !🤗 I know what you mean . I feel like MS stole so much from me. But I had been having symptoms for 10+ years that my drs we're just blaming on my lupus and other diseases I have. The initial MS diagnosis left me reeling - but after a while I was able to find the relief in knowing.

Wilconquer

2y ago

Hello ALL. I'm new here. Have had this monster 👹 for 2yrs. I'm 51yrs young. And have never had anything. Used to play baseball. MS took that also.

Kirky

2y ago

I'm sorry to hear that. MS seems to be a monster. One of my friend's mom also has had it for about 5-6 years now. She has been incredibly strong through it all. Have you tried tai chi? I have been doing it for several months now and it has seemed to help me.

Hortense

2y ago

No. MS is the demyelination of the nerve coatings and the sheath around the brain. Those lesions/damage then cause pain, and other problems. I have MS, and also herniated discs in my neck. They go hand in hand sometimes for reasons unknown to me. If a neurologist hasn't thought to evaluate you for it then they are the professional, right? What do I know.... ( Being serious, not sarcastic)

Hortense

2y ago

Kirky - have you been evaluated for MS at all?

Kirky

2y ago

I've seen multiple neurologists, but none had mentioned MS and so I haven't been evaluated, no. Can MS be caused by a neck injury?

Kirky

2y ago

Hey there, sorry to hear that...I'm having some sort of neurological issues as well. Not sure if it's trig neuralgia, but the doctor has said maybe some sort of occipital neuralgia. The biggest two symptoms are balance issues/dizziness and panic attacks. Whereas, I don't have your exact symptoms/issues, I know how difficult it can be.

cometbites

2y ago

I'm so sorry you're having a hard time! You're doing so well though and we're all proud of you, it's so difficult when everything acts up at once but just know life has ups and downs and you'll get to an up soon enough!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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