New to the App and Diagnosed with POTS: Seeking Advice

Oh and chiropractic care! There is an amazing one in Houston

Hey peeps! I’d say I’m about 85% recovered from POTS after struggling for years . I wouldn’t wish this on anyone but boy it makes you resilient! I’m passionate about helping people. I work in a clinic doing so🤗 there is a lot of research showing the relationship between histamine (chemical released commonly with MCAS) , sleep disorders and POTS. To be honest what has helped me improve the most is micronutrient IV’s and chinese herbs. This year I almost forgot entirely about POTS! Just thought I’d share what has worked so much for me

I have heard of MCAS and briefly looked it up before and totally wrote it as something k could have because I thought it was just allergic reactions, itching and stuff like that. Thanks for sharing o just looked it up again and see that it’s much more than that. I get a lot of stomach issues and unexplained bone pains and some of the other things it mentions. What kind of doctor would you see for mcas?

Have you guys heard of mast cell activation syndrome (MCAS)? It’s often comorbid with POTS. With MCAS there are “histamine dumps” every night, which have all the same symptoms. May be worth looking into. I have both POTS and MCAS and the feeling you’re describing has definitely gotten better for me since taking mast cell stabilizers

Thank you. It’s such a strange feeling right? Hard to even explain. Thank you I will try to put my legs up against the wall next time it happens and look into midodrine. I’m currently on metoprolol but we cut back to once a day recently

Hi! Welcome to the app! This is pretty common unfortunately with hyperadrenergic pots. I believe we potsies over produce adrenaline and can sometimes have “adrenaline dumps” where some of that over produced, stored adrenaline gets released all at once. Can cause sweating, shaking, increased heart rate, increased breathing, etc. Mine also usually happens in the middle of the night. Laying down and putting your legs up against a wall can help until the symptoms pass. I have also been told midodrine can be helpful for that as well but personally gives me migraines.