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Lilidoodles

1y ago

New Symptoms and Frustrations with EDS/POTS

We got some new symptoms again besties. I’ve started having pains in my neck or like, pain/discomfort/exhaustion from simply holding up my head. Idk if this is a thing y’all experience with EDS/POTS or anything else but it’s newish for me. Also like I mentioned a bit ago, my ribs have started sliding around more than they used to and that’s been annoying. Been having more issues with my hands as well. Not been a good time for new symptoms 😭

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Juno2191

1y ago

I have C-Spine instability due to EDS and I've had that "head too heavy" feeling and neck pains you described.

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