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cartoonbean

586d

I have HSD and I'm anticipating an official diagnosis of hEDS in the next couple weeks. In addition I have a fibromyalgia diagnosis. My doctor just lowered my dosage of ibuprofen because she's worried about long term effects. I've tried 3 prescription NSAIDs and had issues with them. I want to try a different prescription NSAID but don't know what to ask for. Does anyone have any recommendations? Sulindac, flurbiprofen, and diclofenac didn't work.

Top reply
    • EncyclopediaFae

      482d

      @cartoonbean yeah I had to stop meloxicam because my stomach was furious and yeah I’m waiting to see a geneticist. Only one in my city and they can’t see me until June

    • Teal100

      482d

      I'm on nerve pain meds as I can't take nsaids.

    • EncyclopediaFae

      493d

      I take methocarbamol (muscle relaxer) instead as daily NSAIDS were making me throw up bile. I’ll only use 600mg of ibuprofen if I’m really sure it’s inflammation getting me. In other news… do your joints feel like they’re being pulled apart because one set of connective tissue doesn’t want to move and the other moves too much? Because ✋

      • cartoonbean

        482d

        @EncyclopediaFae they do feel like that sometimes and it suuuuucks. I ended up being put on meloxicam which is 10 times better than ibuprofen. I also finally resorted to using cannabis again and that's been helping quite a bit. It sounds like your hypermobility may be EDS. 😔 wishing you luck with doctors and accuracy with their treatment and diagnoses!

        • EncyclopediaFae

          482d

          @cartoonbean yeah I had to stop meloxicam because my stomach was furious and yeah I’m waiting to see a geneticist. Only one in my city and they can’t see me until June

    • royalty

      586d

      I just take ibuprofen or naproxen

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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