No Answers for 4 Years: Neurologist Refuses to Treat POTS

Haven’t gone to Mayo for POTS but I’m being assessed for EDS there. So far they’ve been kinda helpful? Got the referral for the EDS clinic after making an appt with a pain specialist. He set me up with a PT and OT consult as well. They need me to do a bunch of labs but wanted 2500 dollars for them so I looked into getting them done elsewhere and they would not order the referrals for them so I had to ask my pcp for the orders. This is all well before my EDS consult which is still a month away. Mayo can be helpful but they’ll be aggravating in the process

To be honest, I haven't heard the greatest things about Mayo for pots. I would do some research before you choose to travel to mayo if it's a significant distance away. They can probably diagnose it if that's what you need, and tell you to do the basic things like take a beta blocker, eat salt, etc, and have you get treated locally from then on. I would try to seek out a pots specialist if you need more than that, as close to you as you can of course

I got diagnosed with POTS from a cardiologist. They did a tilt table test. Depending on the doctor and the facilities they have available you can ask for one(it is expensive though). If you go to the mayo clinic they will most likely do more autonomic testing other than the Tilt Table.

Why are you going to a neurologist for pots?

I've heard that the Mayo clinic has great service most of the time. Good luck!!! Sending lots of love and good vibes to give you confidence with this