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Lostone's Post
Lostone
1y ago
My Journey with a Life-Threatening Neurological Disorder
I got my first symptoms in the end of May 2022. I have been through the worst of this neurological disorder, to include coming close to death, becoming a quadriplegic and having a tracheotomy tube Surgically installed in my neck and going septic. I had to relearn how to breath swallow, eat, sit up, and now I am learning to walk again. If you want any information on my journey please let me know.
Your answer
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Nimbus
1y ago
Sounds like you got it really bad. Do you have any symptoms left today? My GBS manifested with weakness of limbs, mostly hands.
Lostone
1y ago
I am still working on walking, I have to use a walker when I am not at home, around the house I walk without the walker but I look like Herman Munster. My hands get numb when I pet the dogs. I don’t drive yet because I’m not confident in my feet yet. But I am getting better everyday!
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