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n1c0

871d

im not sure if anyone even uses this app anymore, it seems to not have many users. but the concept makes me excited!! i am struggling very badly with my NF right now and itd be lovely to talk to other people about it and just relate n stuff? ive never met anyone else with NF before

Top reply
    • Tater_Lynn

      693d

      I have NF 1 too

    • Tater_Lynn

      693d

      I have NF 1 too

    • Spottie

      744d

      I am 41 with NF 1, from NYC and I am new to this app.

    • Maddi3

      754d

      Always happy to share

    • Talan

      853d

      NF1, 42 year old female, struggle is real. Happy to talk if you need.

    • Andrewmills

      856d

      Hey I am Andrew , I have NF1 please message me, I also have stage 4 cancer brainstem 🤷🏼‍♂️ but I am doing good!

    • mxmommiex3

      863d

      I will share what I know I have had nf1 for 39 years and I have 1 daughter that has it. Also open to hear what other people do for their pain and everything that comes along with it. For instance I have been loosing my hearing in my right ear over the last couple years but has been getting way worse recently.

    • MsAlexis

      864d

      I will share and talk . I have had NF for 36 years

    • Asheree93

      864d

      Me too! I’m 28 and have been feeling with it my whole life. I have always wanted a relationship, but due to NF, that has yet to happen.

    • Bella_D

      868d

      I’ve got NF!

    • Mommy2boys

      868d

      I have NF and I have 1 child that has nf too

    • chloewalker

      869d

      i have had 3 close friends with NF

    • chloewalker

      869d

      im struggling with NF too. you can always talk to me

    • GiraffyPrincess

      870d

      I’m always happy to share my experiences with NF.

    • Bobear

      871d

      If you ever want to talk, I’m struggling with NF and I just moved so I’m going though some stuff with that too. I’m here.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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