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n1c0

Updated 11mo ago

Looking for Support with My Neurofibromatosis

im not sure if anyone even uses this app anymore, it seems to not have many users. but the concept makes me excited!! i am struggling very badly with my NF right now and itd be lovely to talk to other people about it and just relate n stuff? ive never met anyone else with NF before

Can you help? Connect today

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Bobear

2y

If you ever want to talk, I’m struggling with NF and I just moved so I’m going though some stuff with that too. I’m here.
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GiraffyPrincess

2y

I’m always happy to share my experiences with NF.
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chloewalker

2y

im struggling with NF too. you can always talk to me
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chloewalker

2y

i have had 3 close friends with NF
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Mommy2boys

2y

I have NF and I have 1 child that has nf too
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Bella_D

2y

I’ve got NF!
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Asheree93

2y

Me too! I’m 28 and have been feeling with it my whole life. I have always wanted a relationship, but due to NF, that has yet to happen.
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MsAlexis

2y

I will share and talk . I have had NF for 36 years
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mxmommiex3

2y

I will share what I know I have had nf1 for 39 years and I have 1 daughter that has it. Also open to hear what other people do for their pain and everything that comes along with it. For instance I have been loosing my hearing in my right ear over the last couple years but has been getting way worse recently.
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Andrewmills

2y

Hey I am Andrew , I have NF1 please message me, I also have stage 4 cancer brainstem 🤷🏼‍♂️ but I am doing good!
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Talan

2y

NF1, 42 year old female, struggle is real. Happy to talk if you need.
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Maddi3

2y

Always happy to share
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Spottie

2y

I am 41 with NF 1, from NYC and I am new to this app.
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Tater_Lynn

2y

I have NF 1 too

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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