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Tori74

668d

I am 47 years old and I'm wondering if my Neurofibromatosis is going to get worse as I get older? I already notice more pain and of course I constantly find new fibromas..can anyone tell me what is going on with you and how you handle the low self esteem.

Top reply
    • Sierra_Turtle

      598d

      The older I get the more my pain level has increased

    • Sierra_Turtle

      598d

      The older I get the more my pain level has increased

    • Frosty21112

      647d

      I have nf1 I’m and if you get pregnant as a women it will get much more intense because of your hormones. Mine is not that bad im 34 now.I have need one minor surgery for my leg.Any foods that boost your hormones or test levels with make it worse.For example I body build and took test shots and it made it worse.

    • catgirl1995

      668d

      I have nf2 and I had to get surgery last year because one of the tumors were making me go blind 🦯🦮 ever since then I feel insecure because I have to use a walker now and have on a belt especially if I go out it sucks to have this disease I wish they had a cure for it but things happen for a reason let's just pray that we all can make it another day or two no how about a year especially with this war that is going on right now smh 🙄 it also caused me to lose my hearing 👂 so all I hear is ringing for the last past year

    • lilbitjones

      668d

      I feel you on that and as I've gotten older it has progressed and I don't know how to deal with it. I've been through 2 stage 5 cancers. Still trying to find my way through this.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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