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jaesun

205d

my rheumatology appointment is next week, and i am excited & nervous and stressed about how it will go. i was never taken seriously about my issues, ive had lupus since childhood & was diagnosed after advocating for my health after years of complaining & suffering. i wrote a head to toe symptom list using a few health sites as reference with my own experiences. i fear im going to downplay what i experience! and dont know to what extent ive been actually thinking was “normal”

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One of the replies suggests that before your appointment, you should write down all the symptoms you have to make sure you remember them all when you meet with the rheumatologist. The rheumatologist is going to do an assessment to see what your joints can do and their range of movement and where the pain is. It's recommended not to take pain meds before your appointment as it will give the rheumatologist a better idea of your pain. Make sure you are telling the rheumatologist everything you can about what you're experiencing. If there is anything about lupus that can be told through blood work but if it doesn't show anything, be a little persistent so you can get the help you need.

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