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Kaori

750d

Do other people with MG have a negative Musk antibody test?? What treatments are you on or have taken in the past??

Top reply
    • cabbage

      711d

      I don't have any antibodies and the doctor first wanted me to start mestinon then she wanted me to try the. Prednisone and. Then she wanted me to try the ivig ,all of these meds gave me a reaction like swelling in my face ,itchyness ,vomiting ,and others ,I can't do any of this ,so what else. Is there for me to try ,I just want to get better and. Be able to do things like before ,what else is there for her to try me on other than these

    • cabbage

      711d

      I don't have any antibodies and the doctor first wanted me to start mestinon then she wanted me to try the. Prednisone and. Then she wanted me to try the ivig ,all of these meds gave me a reaction like swelling in my face ,itchyness ,vomiting ,and others ,I can't do any of this ,so what else. Is there for me to try ,I just want to get better and. Be able to do things like before ,what else is there for her to try me on other than these

    • willowdiamond

      725d

      I am sero neg and I have gamaguard infusion every 3 weeks with decadron to help with side affects

    • DeMoonlight

      738d

      Sorry. I can’t help with that. I am seropositive. I haven’t taken a musk or even SFEMG. I had blood work and started right on mestinon. Then a few months later prednisone. Then a few months later cellcept. And now I’m starting vyvgart. I was diagnosed 6/2019.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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